Talking with Rohan Kallicharan

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We couldn’t resist this photo of Rohan Kallicharan with an example of his starring role in a mental health campaign displayed in the London transit system. How many public awareness messages have you seen with a real person identifying as someone who tried to take their own life?

Intrigued by this relative openness in the UK and the engaging nature of the large mental health charities there, we checked in with Rohan, who spends his time working as a recruiter, taking seriously long-distance runs and enjoying football of all kinds, including the NFL.

Here, he talks about why social media is hardly the solution to messaging, how pitiful crisis care in the UK has become and why speaking out on mental health issues is essential. “It’s so simple,” he says. “We all have a right to live a happy life, a right to not be judged, to not be scared to speak out, to be healthy mentally and physically, and yet so many people are afraid to exercise that right for fear of being stigmatized. ”

Who are you? Please introduce yourself.

My name is Rohan Kallicharan. I’m based in Birmingham in the UK. I turned 40 last month. Since I was in my late teens, I displayed symptoms of mental illness. I never got the diagnosis of bipolar until after I had taken two overdoses, the second of which was in 2006. So for a long time, I was mistreated, undiagnosed until I was 32. From there, it was a case of taking baby steps, rebuilding my life from scratch to where I’m now mentally and physically healthy, and very happy.

You’re now the face of a national campaign. How did you get into that?

As I said, I twice tried to take my own life. After my second attempt, there were two places I turned to for help. I was very lucky get some private counseling, one of my mum’s employee benefits, but the other very important source of help with was Mind, the mental health charity. It was their branch in Manchester who at the time gave me one-on-one and group support, which really allowed me to, for the first time in 15 years, realize I wasn’t a freak, this bad apple and really horrible person I had begun to believe that I was. I realized my only problem was that I had a really serious illness. I began through Mind to be able to speak to other people who had things in common. That was the biggest single step in my life in moving forward, accepting myself again. I had hated myself for so long. To find a group of people around whom I was accepted made me feel normal again, human. It was the most incredible thing. It gave me the strength to start rebuilding my life.

Mind played a huge part in rebuilding my life from where I was absolutely broken. Mind more than anyone helped me to rebuild. So when last year I’d become very overweight, about 19 stone (now I’m 12 stone, but that’s another story), I decided to start running so I could raise money for them. It’s all really gone from there. In the last 12 months, I’ve been involved in fundraising and, to this point, I’ve raised over five and a half thousand pounds, with another 3,000 guaranteed from the US-based chain of fitness clubs Anytime Fitness. I went from not being able to run a bath to running the London Marathon, which was the greatest experience and achievement in my life. Next step, New York … well, hopefully one day!

That’s how I got involved with Mind again, fundraising. However, because of things that I had written on my own blog, I also started doing some writing for Mind and Time to Change. Time to Change is a joint venture campaign aimed at reducing stigma. It’s National Lottery funded, run by Mind and Rethink, the two most significant mental health charities in the UK. Through that writing and fundraising, I applied to and was invited to take place in a photo shoot last October, through which I became a “Face of Mind.” It is an unbelievable honor. I was humbled by it.

When my face first appeared on a poster on the London Transport Network, friends kept on sending me pictures. I would receive photos saying, “I saw you this morning!” I was 100 miles away in Birmingham, but they were referring to the advertising poster for Mind. The first time I saw it, I was on a train in London. I was down there with work, and my friend tapped me on the shoulder and said, “Look up there.” I said, “Oh my God.”

It’s just really, really humbling to be able to give back to a charity responsible for me being alive today. I wouldn’t be here without them. After that second attempt, I remember lying there and I knew full well this couldn’t go on. I was playing Russian roulette with my life. If I wasn’t treated, there would have been a third or fourth attempt, but I had barely survived this one. Without Mind, I’m not alive today, it’s that simple. To be able to give back is just the most incredible thing, and I know they really appreciate it. However, they don’t realize the thanks are all from me. It’s a two-way thing, and it’s nothing to give back to the people who have given me my life.

How did you find them in the first place? What was your motivation to reach out?

It was actually my counselor. After I took that second overdose, for the first time I got a little bit of guidance from NHS. As you’re probably aware, there’s a lot of debate about crisis care in the UK at the moment, something being really highlighted by Mind’s manifesto. Crisis care is a real problem. After my first suicide attempt, I was released with no real aftercare, so it is no wonder I ended up back there again. After the second, I was really lucky that Manchester Royal Infirmary said, “You don’t leave here without going to a responsible adult.”

The only person was my mum, which meant that after being in denial for so long, I had no choice when I rang from the hospital and said, “Can you pick me up? I’m in the hospital, I took an overdose, I have a problem, I need help very badly.” It was the first time I had done that. I had been living with this since I was 17, I just thought I was a really bad piece of work, you know. I didn’t know it was a mental health problem.

By opening up, I was able to seek help. I had five sessions with a counselor, which were great. The first five were free. He then gave me a couple he didn’t charge for. After that, I remember turning around and saying, “How much does it cost to continue?” and he said, “You don’t need me anymore.” “How do you mean?” I responded. He said, “You’re working this all out, you don’t need me anymore.” I said, “Nah, no way.” He’d become my crutch. I think he sensed I’d done the hardest work already, getting in touch with my feelings, facing my demons in the eye, but he also knew I needed that something to lean on, so he signposted me to Mind.

Although Mind is a massive charity, mental health is something nobody wanted to talk about, so it still was not in my field of vision. I didn’t really know about them. Everybody knows Cancer Research, AIDS charities, Oxfam, the Red Cross, all  the big ones. But when it comes down to Mind and Rethink, you know they weren’t charities people spoke about, because they don’t talk about mental health. It was only through the counselor that I turned up at their door.

And they put you in a group with others?

Yes, and through that networking I suddenly realized I wasn’t alone. And you know what? When you live your whole adult life thinking you’re the only one doing these things, this is a massive relief. Bipolar is a horrible thing. You live life on a roller coaster, doing things out of fake confidence, feeling invincible, on this high wanting to party the whole time, then suddenly the things you do make you ashamed when you go down into the depressive period. It has an even higher rate of suicide than any other mental illness, and that’s because you cannot sustain this absolute roller coaster. I’d lived life from 17 to 32 being ashamed. There are no words that can describe how much I despised myself. I could see the hurt I was constantly causing others by my behavior. I just thought I was a really bad apple, that I was, excuse my French, messed up. I’d use slightly stronger language if I could, but I’m not going to.

You know, it was only after I realized, “Actually, no, I’ve got this serious illness, and there are other people with it as well,” that I had the peace of mind to know that I could overcome it, that I was gonna come through. From there, I got to that point at the beginning of last year where I was desperate to make a difference in the lives of others. I want to make a difference. I nearly lost my life because I sat in silence in a prison for 15 years of four walls and darkness. And because of that, I nearly lost my life. I don’t want anyone, ever, to feel scared of talking. I want to be a voice for those too scared to speak out.

What have been some of the more striking responses?

Ninety-nine point nine percent of people absolutely are totally supportive. If you read my Twitter feed, I sometimes have an aversion to what we call the I-word, “inspiration.” That’s one I’m constantly described as. However, I still look in the mirror and see what’s beneath, and I know I’m far from perfect. What stands out to me is knowing I have made even a small difference: Seeing a a couple of colleagues, friends, put their hands up and say, “I’ve got a problem.” It’s getting an email from a family friend a few weeks ago saying, “I had no idea, and I’m so proud of you.” It’s getting a message from a friend at university, our friendship had been destroyed by my behavior in the excesses of manic periods, saying, “I wish I had have known.” A complete stranger on Twitter saying, “You saved my life.” All of those things and more.

And you know, I’d love to lead a really private, quiet life. Because that’s who I am, quite shy, introverted, but the minute I chose to be a champion, I gave that right up because I’m committed to speaking, to putting myself out there, committed to ending stigma. Obviously, I’m not doing it alone. Look, the way I see it, we all have a sphere of influence as individuals, if we can all influence our networks, and then those of others around us as a knock-on effect, we can do this thing.

Mind saved my life, and I’m just committed to ensuring they continue to save others. It really is that simple. We live in such a cynical world that people are looking for an agenda, but there really is no agenda for me. It’s so simple. We all have a right to live a happy life, a right to not be judged, to not be scared to speak out, to be healthy mentally and physically, and yet so many people are afraid to exercise that right for fear of being stigmatized.

Have you ever felt pressured to censor yourself when talking about your attempts?

Very rarely. There are certain words that charities prefer you not to use. I don’t talk about “failed” suicide attempts and don’t perhaps go into detail about those attempts. You’ll notice I used the word “overdose,” and that’s as much as you need to know. I don’t talk in graphic detail, I think that’s the only thing for me.

Other than that, I feel I can be very open. But again, I’ve got a very thick skin. Look, at the end of the day, there’s posters on the London Overground saying I attempted suicide. I can’t hide from that. I was in a national paper in February telling people about my story, so there’s no hiding place for me. I have absolutely no fear in what I say. The charities are very good in terms of non-censorship, but they’re rightly very wary of the audience that reads them and absolutely avoid any triggering language. So obviously, I’m conscious of that, you don’t want to give ideas to someone suicidal about what they might do.

If/when suicidal thinking comes back, how do you deal with it? And as the “face” of a public campaign, do you feel any pressure to be “OK” all of the time?

I have not experienced suicidal thoughts for a long time, although I am still prone to severe depressive episodes. The difference is that where I once suffered in silence, I now tell people very openly that I am going through a difficult period. For so many people with mental illness and mood disorders, knowing that they can speak to someone makes the biggest difference. As a face of Mind, I am very open about when I am struggling. Mind and Time to Change are really trying to get the message across that it is OK not to feel OK, so I feel no pressure at all in that regard.

Is there any kind of suicide attempt survivor movement in the UK?

There are a lot of smaller groups. For example, Forward For Life, they’re based around suicide prevention training. So that’s huge. There’s also Dr. Alys Cole-King, doing a lot of work. A lot of what I see is on the social media sites, there’s a huge amount going on there. What we have to remember is that social media is the merest, smallest microcosm of life. It’s not useful in areas where people can’t get to the Internet. You have to make sure messages are getting out to people who really need them. That’s what I don’t know, I have to question whether we’re really doing that, although it’s not a question of lack of effort.

Take, for example, New York. I have family in Queens, where there’s a big Caribbean community. And in those Asian and black communities, there’s always been massive stigma around mental illness, and likewise here. In the States, there’s an even bigger melting pot when you consider Hispanic communities also. We’re talking about huge stigma. Time to Change is doing a lot of work around what we call BME, black and minority ethnic communities. It is a massive area we really need to engage.

How do you even start the conversation when some people would rather just walk away, avoid it?

You know what, sometimes you have to take a step back … I’m not being defeatist, but if someone is not ready to listen yet, there’s no point in forcing it, because it will push them further back. It’s all about being approachable and just planting the seed and saying, “OK, I understand you don’t want to talk, but if you want to at some point, this is where I am.” It’s about signposting and making them aware. They might not want to talk to you because you now know who they are, but they might want to speak to a stranger. Let them know that if they want to talk, there’s somewhere to go. I did a radio show in March for the BBC Asian Network. A lady phoned in, obviously in huge distress, very powerfully emotive. We didn’t want to let her off the line. In the end, the people in the studio were able to give her support numbers. To help someone, they have to want it. I always look back on my experiences. If you had tried to force help on me, I would have rejected it.

I had a really difficult week last week; one of my old friends from university, she suffered from depression for a long time, and I had lost contact with her for years before she found out what I was doing with Mind. She told me that when we were younger, she tried to take her own life. She got back in a difficult place last week, and even now she didn’t want to talk to anyone, just me. She trusted me. I spent two nights on the phone, being silent most of the time, just being on the other end so she wouldn’t do anything. And finally she said, “Thank you for listening, I’m going to go speak to someone.”

I found that a hugely traumatic and triggering experience. I can empathize, but actually my skills are in campaigning, fundraising, advocacy, not necessarily counseling, but I will always do my best for people. Does that make sense? … I was looking into training for the Samaritans, and a friend said, “It’s not for you.” After last week, I said, “My God, you’re so right.” Someone like you or me, we’re too tempted to draw on our own experience, but each person’s experience is totally different. We can empathize, but that’s actually as much as we can do. The key is knowing where and how to signpost. Every week without fail, I get calls and messages from friends saying, “I have a friend with a problem” … and I signpost them to relevant people. That’s the best advice I can give them.

What’s your take on peer support?

That’s a really tough question. I think peer support is massive, but shouldn’t ever be confused with crisis care. Peer support is listening, understanding, empathizing, but never crossing the line of trying to treat. That’s a skill in itself. It’s knowing, “Where do I stop?” So yeah, look, just as I was explaining, I’m constantly approached by people, which is why I’ve done what I have, to get people to speak up. It doesn’t make me happy when a friend calls to tell me about someone in severe crisis, but I’m relieved they approach me. It’s knowing where that place is to stop, and I’m getting pretty comfortable with that. The model Time to Change uses is the lived experience model. We’re using that in advocacy and championing, saying, “I’m an example that you can live through this.” Or, “I’m still here. I’m someone who really understands.” The same reality is however true even with that, it’s knowing where you stop and where someone who’s qualified to help takes over.

What is the Mind manifesto, for us outside the UK?

Next year is General Election in the UK, so Mind has produced a manifesto to lobby political parties. It’s on their website, saying, “Look, mental health has to be on the political agenda for these elections.” It has to be there. I’ve lobbied my own member of Parliament. Great. It’s not quite meeting with a senator for a coffee, but I’m meeting with an elected member of Parliament to talk about mental health. It is a small step in the bigger picture, but a massive one for me.

What would you most like to change?

Rip out the whole bloody lot and start again when it comes to crisis care. The system is just broken, Cara, I can’t begin to describe it. The system is failing people left, right and center. People are not getting admitted when they need crisis care. It starts with GPs who, unfortunately, cannot be expected to have specialist knowledge around mental health, they’re called General Practitioners for a reason, so all many of them want to do is prescribe everyone anti-depressants. That doesn’t work!

They’re reluctant to throw people into the crisis care system because it’s so understaffed, and even on occasions when they recommend people to counseling, there are waiting lists for forever and a day. It’s taking people to attempt suicide before they take notice, and even then they don’t take notice half of the time. The system is so broken. It’s absolutely scandalous. There aren’t enough beds or staff, not enough knowledge. People want a one-pill-fits-all solution. The system is a joke. And people are going to die if they don’t sort it out. And that’s why it’s got to come from the government. There’s got to be an edict on change. I’m sorry, I’ll get off my soapbox in a minute.

Look, I give the example. When I took my first overdose in 2003, I was kept in the hospital overnight for obvious reasons. They wouldn’t release me until I saw someone from the crisis team. But they were too busy. On the second day, they were still too busy. So I had a 10-minute meeting with a nurse. “Are you gonna do it again?'” “No.” “Off you go, then.” There are people being let back out who can be a danger not only to self but to others. And that’s where you get sensationalist headlines, and people get exactly the wrong idea of mental illness, and start stigmatizing. But the bottom line is, the system is failing people. We say it constantly, one in four people will live with mental illness at some point in life. If we as the National Health Service can’t deal with an illness that’s gonna effect one in four, we have a massive problem.

Where do you see hope?

I see hope because there are so many tragic stories, so for all the wrong reasons, in a way. However, I see that hope because people are beginning to understand how serious this thing is, because more and more are being affected, losing family members to suicide, seeing family members suffer from depression; that shouldn’t bring hope, it should bring despair, but it brings hope because people are standing up and saying this a real, real problem.

I see hope that a generation of teenagers in this country are now seeing friends suffer from self-harm and depression and see that nobody is listening, but these kids want a voice. They want to make a difference. If they can just be empowered to speak out, they will change future generations. I’m absolutely convinced of that. That’s why charities have got to engage with these youngsters who desperately want to speak out and want to be heard. They want people to know, “We’re struggling here, but because I’m a teen you think I don’t understand life. Well, I do. Listen to me.” They’re the ones who will create the future. They’re the ones who will eradicate stigma.

Any interest in running for office yourself?

Not for me. I’ll keep up my soapbox on the Internet and continue to campaign and fund-raise. Anything Mind asks of me, I will give them my life. They’ll never ask for my life, but I’ll give them every ounce of energy I have, because everything I have is because of them.

Is this work your career?

This is all in my spare time. I work very long hours every day as a recruiter. I work for a consultancy, so I place people into jobs mainly in procurement and purchasing.

Who else are you?

OK, I’m Rohan, a recruiter, Rohan, a massive NFL fan up all hours of the night and early morning despite the time difference in the States, a Redskins fan. A massive sports fan, which probably ties in with my running. I’m a season ticket holder at Liverpool Football Club (soccer to you guys!), and I’m a runner. And you know what? I’ve run out of hours of the day after that. I love my family and friends, I’m a devout Christian. As a Christian, I believe God gives us a calling. For me, my calling is speaking out about mental health. I’m very passionate about what I do.

Talking with Lilly Glass Akoto

Lilly Glass Akoto is a licensed clinical social worker, and in the course of this conversation she said something startling: “I never got any training, no specific training on suicidal thinking. … there’s nothing to do with helping someone with suicidal thinking. There’s nothing to do with how to talk with somebody, give somebody hope.”

If social workers aren’t being trained in working with suicidal people, who is?

Here, Lilly talks about the risks of speaking out about suicidal thinking as a professional and her work to address them, her thoughts on whether someone needs to be “cured” before taking on public speaking about their suicidal experience, and how she, as a strong Christian, found it hard to have support in her own church on mental health issues.

Who are you? Please introduce yourself.

I think you asking me that, versus someone else, obviously I would give a different answer. For wanting to know where I’m coming from and why I’m part of the task force, where I’m coming from is 30 years of battling depression. I’m an adult adoptee, I was adopted into a white family and grew up in a white world. The depression started not because something terrible happened to me but because I couldn’t figure out my existence. As a 7- and 8-year-old, thinking why I was on this earth was a kind of weird thing. It makes one feel quite different. So I battled depression. I would cut on myself. I attempted suicide five times. My last was six years ago. And when I tried to kill myself the last time, I got myself into counseling, EMDR. And for whatever reason, that worked so phenomenally well for me. Literally within two months, I was a completely different person. I’m already in the field, and I’d been in counseling for a long time, been doing therapy for others for a long time, and I like to understand how things work. After my very first session, I immediately started feeling better, and I was questioning the process: “Why does this work?” By the second session, I didn’t care. I felt so phenomenally better, I just didn’t care.

And so, pretty much since that healing process, I stuck with her for two years, six sessions of EMDR, and by the end of it, I was a completely changed person. But one of the interesting side effects is that I then had this sort of diarrhea mouth syndrome, where I sort of went around telling people how great EMDR was and how everybody could get healed. I went to extremes: “Hey, yeah, I tried to kill myself, but now I’m doing great!” It was not great. I ended up losing clinical positions because of it. I went through a bit of that. But in my life now, I’m very centered, very clear about it. Now I have a great passion for suicide attempt survivors, a passion for people to heal from brokenness. I don’t know about you, where you’ve been, but for me, a lot of mental health agencies, programs, have been “Yeah, you’ve got a debilitating mental health issue, and we’ll help you manage.” I think that ‘s OK, I want to promote teaching skills, how to deal, but I’m about the next step, healing. That’s really lacking. So that’s one part of who I am, you know.

What will you pursue for professionals?

Right now, I’m thinking about … I’ve been working with NAMI and have a great girlfriend there, and we talk all the time. There’s a couple of things going on with our NAMI here, peer-to-peer and family-to-family, but there’s no professional-to-professional. So one idea is following the same format and introducing to NAMI professional-to-professional, so that professionals have a safe place, a free, safe place to go to process through. And I’m thinking about, like, educating folks about how to talk to their employers, the supports needed in place, how talk to your family when you’re struggling at work. And how do you best manage the duality you feel as an employee. Meaning, you know you’re doing good work, but also you’re now struggling. So how to balance those two so the depression or whatever doesn’t get the best of you. And you’re able to gain some skills on how to get things done. I know a lot of professionals won’t talk about struggling. Instead of that, they sit and suffer with it, and things get worse and worse. I fortunately happen to be someone who, I would run to work because it was safe for me, the one place I felt successful, but lots of people, they don’t even realize the slew of mistakes they’re making on the job. So having a safe place to talk this out without the threat of somebody else, a boss or colleague, reporting them, is sort of what I’m thinking about right now.

And NAMI is pretty receptive?

Oh yeah, they would definitely take that on. Our NAMI is, anyway. The other thing I talk to my girlfriend about all the time is, they’re not good with cultural issues. Our NAMI is pretty white. And you know, you need to pay attention to culture. I’m biracial and navigate the white world better than the other world, but at the same time … I don’t believe in this whole “Make all those exceptions and special things for people of color,” but I do believe that culture matters. So whether you’re a white country boy or a hip-hop whatever, it doesn’t matter. The culture has to be recognized and acknowledged, I guess. And I think NAMI is not doing a good job at that at all. And they just now, now they have LGBT, they have developed a NAMI group for that, so that’s good. But in terms of like, for example, you’re not gonna find a lot of black people here in Oregon who utilize NAMI, and NAMI isn’t doing anything about that.

Why is there such stigma in the mental health and suicide prevention world about suicidal thinking? You’d think here, of all places …

Honestly, I really don’t know. But in my journey, the mental health field was the absolute worst and most painful to me. The question is the exact same question I’ve pondered. How is it that in the mental health world, the world that should understand these things, they are the worst and most persecuting? I don’t get it.

What’s with the liability fears in this field? If this is a potentially fatal health condition, like cancer or heart disease, I don’t understand why medical professionals can accept such risks and treat people while mental health professionals back away.

Yeah! I don’t know how to answer that! I like the analogy you gave. It’s a question that just, every day I’m asking. And again, you know, that’s why I really speak up and promote in my practice that I will work with you if you have suicidal thinking.

I never got any training, no specific training on suicidal thinking. All they do is teach you how to assess, this idea that you assess every session for stability and use a form to ask questions, but there’s nothing to do with helping someone with suicidal thinking. There’s nothing to do with how to talk with somebody, give somebody hope. We were never given lectures on that. But I also went to a school for social work. Maybe in a counseling program, they do. But in a school of social work, it’s not one of things they teach you about.

That’s odd, because I’ve heard some people say they prefer social workers over other therapists.

Yes, and I think the reason is because social workers are trained to think more holistically. I started off on the psychiatry track, but they tried narrowing me into something, and I needed something broader, and social work provided that for me. The reason why folks seem to to do pretty well with social workers is because we are trained to think about your spiritual health, emotional health, all of those different things. Versus just, “Here’s your thinking, and here’s how we can change it.” You know what I mean? I’m biased, but that’s why I think you hear that. And we’re resourcers. You can talk all day to somebody, but if you don’t, you know, you have to give people tangible things, concrete things to work with.

What needs to change?

You know, I think a large reason of why I was so excited to join the task force, I think working on this document personally has given me a lot of hope. I can see the potential of how this document really will begin to change people’s thinking. Just for AAS to go through what they’re going through, “If you sign up and say you’re an attempt survivor,” they’re finally making way for that … I think we’re expanding our conversation about suicidality in general. I think we’re pressing forward.

I also think, and I don’t know, this is just baby thinking right now, but in my experience sharing my story, I’ve been doing it more and more, I’ve been asked to speak. And I’ve noticed the impact my story has is amazing. I’ve never been a person who toots my own horn, but I am in a place in my life where I can recognize the fact that my story does change things. So I was so excited when you said, “Hey, want to talk?” Yeah, certainly! I know putting my story out there, being a professional … I have this funny image in my head of dressing in the most expensive ladies’ outfit, with my jacket and my pumps and everything else, looking very sharp and professional, and then speaking my story. To make the point that I look put together, and I am together in my life now, I’m a professional, but there’s the reality of my story. And I feel like, the more speakers bureaus we can get on board, that’s another way to really begin to change people’s thinking.

Someone had mentioned creating a website. My thinking is, how great would it be to have video vignettes of people telling their story on the website? We live in such a media world, you know, I just think these things are powerful and can make an impact. So I don’t know if I answered your question, but finding people to speak out and doing more and more … Obviously, at some point there has to be people fighting for policy change. There needs to be clearly stated laws within the job contract that say, “If I need to get mental health help, my job is secured.” It’s really clearly written out. We have EAP, but not every place has it, and some EAPs are good, and some are not. Who trains them?

Ideally, what protections would you like for people who are open about this in the workplace?

The basic thing is job protection. I think that’s the greatest fear. You share your story, you’re open about it, and then you lose your job. I think job protection is one. But there’s also this element needed of … I’m trying to find the right language, but … I recognize that, to share my story, not everybody is ready to hear it. So let’s say on the job I share my story, and maybe someone gets triggered. And I’m not saying I caused it, but I am saying that a policy put into place has to not just be for me but for the agency. Does that make sense? I want the right to express whatever I need to express, but also I want safety for myself and my colleagues in the work setting. Lets say I’m working and have worked for two or three years at a place and get depressed and try to kill myself. And that information came out. One, I’d want protection. Two, I’d want the ability to process it with my boss. What about a work plan that’s about your emotional safety? I don’t think there’s anybody who would consider that because they would see it as a threat: “You’re emotionally unstable?” But I would like to see a work plan that doesn’t just involve technical things but also emotional support for people. EAPs give you, what, three sessions a year? Maybe if I’m really struggling, I get an additional three sessions. Tons of people never use EAP. The number one thing is not losing your job. And if a safety plan is in place, to make it safe to talk about it with your boss. If a colleague finds out about it or has to know about it, maybe they also need support.

You mentioned public speaking. Do you think people should be open about still having bad days? Some people have said they feel pressure to come off being “cured” when they speak.

Sorry. I’m only laughing because I think it’s a fabulous question. I’m just thinking how to formulate this answer, because I have an immediate and definitive answer. I believe that anyone at any particular level, meaning two weeks after it happened or 10 years after, I think anyone at any level can speak if _ so here’s my if _ if they’ve had the proper training and are at a proper place to be able to deliver the presentation. Does that make sense? If you and I were having this conversation four years ago, I really wasn’t ready to go speak. There has to be some sort of, and I don’t know what the process is, but I believe people need to be properly trained on how to properly deliver and after-deliver.

For example, Sally, who tried to hang herself, goes to a speaking engagement but hasn’t planned out her day for afterward, self-care things. If she hasn’t been able to think through these things, she’s probably not ready. But if you have researched it and exactly what to do after the speaking, and you know how to respond to different questions that come up, you’re probably ready to go and speak.

Your question though, should people admitting it’s not a done deal speak? Yes, 100 percent, because that’s the story of our lives, our reality. I’ve been in this profession over 20 years, and I’ve always done really good work. But 14 of those I was vastly depressed. I would meet with clients and go home and think about killing myself. But I would still deliver very good services. That duality is there. I’m married, I have two beautiful children, I’ve always been successful in my work, but that didn’t stop me from thinking of killing myself over and over. I definitely think people can talk about it, and I don’t feel that pressure at all to hold back anything, and I’m thinking maybe that’s a problem. I’m way too open. I say it like it is. I also realized that every presentation has been impactful because that’s how I am. And I’m OK with that. It doesn’t work for everybody, but that’s who I am and I’m not going to change it.

Since you mentioned your children, I wondered how you address this issue with them.

Well, this would then be another 20 minute conversation. My older son was 13 at the time … He saved my life. He came down the stairs, in the middle of me hanging myself, and screamed for his father. What a horrible experience, and one that took me a long time to process through. He and I have talked about it a few times, and finally he was old enough to tell me to never bring it up again. My younger son was asleep, and we have never spoken about it. My husband and I have never really processed through, since I attempted right after an argument with him. It is still a lingering issue within our family that I hope, one day, can be resolved. I know that my younger son, for a short time, went through a season of making statements like, “I am going to kill myself” when he would get upset about things. I can only conclude that even though he was asleep, he did overhear various conversations that followed. He and I did talk about issues but more in regards to his feelings, not about what Mommy did.

What else would you like to say on this topic? That’s a pretty broad question.

Yeah, really! Honestly, like I said, I’m at a point in my life where I want to speak my story, and I’m really … Let me back up. Let me share something different. Part of what happened in my healing process is, I got to this point of understanding in an extremely powerful way that I’m on this earth and one day I’m not gonna be. And that’s how simple life became for me. A lot of people that I initially started expressing that to kind of thought that was morbid, “I don’t want to hear that,” but for me, in my now-life, as I often refer to it, my life is just not that important that I … I’m not saying I’m not important, but I’m here on this earth and one day I’m not gonna be. It’s just that simple. So I give everything every day because it could be my last.

What I mean by that is, I want to speak my story and honestly, because I don’t know if someone in that audience is gonna be someone I touch that day and starts to change something in their life. I take every opportunity to make an impact. I don’t know what else to do with my life other than that. Whatever wisdom I have at this point in my life, I’ll share with whoever needs it. It’s so awful, my husband, he’s a very private person, and I’m not. It’s hard for him because of that, but I have nothing to hide, no secrets.

The whole other level for me is I’m a Christian, very strong in my faith. I pray a lot. And so, you know, back to who am I, I would say … To me, honestly I’m Lilly, and I’m a Christian first, and the whole life revolves around the Lord. Everything revolves around that. It’s not that I’m not important, I know I’m important, but my life is not. For my belief system, my life is in God’s hands, and I know he has beautiful and perfect plans for me. And I know there are challenging things going on, but they will lead to something great. But yeah, for what’s it’s worth, that’s kind of the reality of who I am. I’m a child of God, and I live my life that way.

And ironically, that was another area that was not a support to me in my healing journey. The church wasn’t a support to me because the church I belong to, there are a lot of misunderstandings about the work I do in the mental health world. There’s never been a thought to do Christian counseling. I’ll always work in the secular world. The church was like, “Just pray over it. Just pray and heal.” I was like, “Well, if that was the case, I would have been healed long ago.” They didn’t understand the issue, the fact that I’ve struggled with depression. And yes, I’m a Christian, but I’ve tried to take my own life. If just knowing God and praying would have solved it, I would be healed long ago.

I had had a therapist card in my wallet for a year before the incident. And it came out of my wallet, and I started counseling with her. And my whole life changed. That’s about God, keeping a counselor’s card in my wallet for a year. And that’s hard for my church friends to understand. Again, that’s the church I was connected to. I’ve since spoken my suicide story in other religious settings, other churches, and I’ve had a much different response. So yeah. it was really hard for members I went to church with to be supportive.

You kept the card in your wallet for a year. Were you trying the church approach first?

No, it was just deciding to get help. I’d seen counselors but for like three months, whatever. My true friends said, “You need to stick with a counselor at least a year.” When I started with the counselor after the incident, I did it for a little over two years. I made that commitment for myself. No, I didn’t want to get help and didn’t ask for help.

The mental health field must think we’re incredibly stubborn, always telling us to get help and having us refuse.

It’s a cycle, right? You’re depressed, troubled, you know you want help, need help, but you’re too tired or too ashamed or too sick to get the help you need. It’s a horrible, horrible trap, so to speak. Yeah. And I mentioned a few times about the duality that happens, too. I was really super-great at work, and had really good friends and things like that. On the outside, I looked really spectacular. But there was the inside that people didn’t know about, that I didn’t want them to know about, this shameful, ugly, pitiful person. How dare I ruin this image of me?

That was well put. Who else are you?

So I have this name, my name today is completely different from the name I grew up with. I legally changed it in 1994 before my first son was born. My parents adopted me and named me Brenda Joe, which makes me cringe, but my birth mother had named me Gail Celeste. Then I was in a foster home and my name was Muffin. Joy, joy. Then I was adopted. Then, when I was in college, I changed it to Brenna. Then when I went to Ghana, I had been writing about a deaf girl named Lilly. When I went to Ghana, I said people could call me Brenna or Lilly, and Brenna was hard to say and Lilly was easier. When I came back, I legally changed my name to Lilly. Glass comes from when I found my mother. I met her in college, and Glass is a representation of my reality of all my fantasies breaking in meeting my birth mother. I seriously had convinced myself that Oprah Winfrey was my birth mother. Meeting my birth mother, she was no Oprah. Glass represented how my world collided. Akoto is from my husband.

What’s the point of all that? Today, I just feel I am who I am. My current name is who I am, and I feel like up to this point, I was always what everybody else would tell me to be. They had given me these names, had these expectations, trying to make me somebody I wasn’t. Today, I get to just be me, Lilly, a Christian, biracial, adopted, married woman with two kids who works in the field of mental health.

So, yeah. I’m involved in a lot of volunteering, with the Dougie Center, Suicide Bereavement Support, and the task force, of course. And I’m a little bit connected to Eduardo because he asked me to be on the advisory council for his center. And NAMI. So I do lot of volunteer work, sticking within my field. Other than that, in terms of just being me, I love the outdoors, I love the country, I love athletics and all that. And I’m an easy person, you know? My husband doesn’t think so, but I’m an easy person. I get it: I’m here, and then I’m not.

Talking with Alexis Wortley

Alexis Wortley is coming out, here and now. In the eight years since her attempt, she has been embarrassed about giving up on herself and has been seeking atonement for what she did. Seeing another attempt survivor speak openly helped her decide to do the same. As she started sharing with family, friends and colleagues over the past week, a weight began to lift. And she was surprised to find that her parents had long forgiven her.

Now Alexis, an elementary school teacher in Washington state, is working on finding ways to be happy and realizing that maybe people do care, if you let them. “Maybe the human spirit is also being strong enough to say, ‘I’m not as strong as I thought,'” she says.

Who are you? Please introduce yourself.

So, who am I? Um, well, and it’s interesting, I read previous interviews and wrote stuff down, and now I’m looking at it thinking, “No, I don’t want to say that anymore.” I’m just another person in the world, a teacher, I wanted to be one since I was 5, and I used to come home from school and want to play school and had this dream of standing up in front of a classroom of kids and giving them knowledge and learning and facts and stuff. I’m a military brat, both of my parents were Marines, and it’s kind of funny that both are from the same state and met in Hawaii, and here we go. And I’m a daughter, a sister, a stepsister, everything that most people tend to be, and I’m someone who really cares a lot about people, I wear my heart on my sleeve, which sometimes gets me in trouble and is a factor in why I get depressed.

And I’m not good at describing myself because I don’t usually like to draw attention to myself, but I would like to think I’m funny, pretty smart. I like to read. I’m an animal lover. I do everything for other people but rarely for myself. And I’m gonna have to start learning for myself, make myself a priority, because I don’t know how to do that. I’m an introvert, I can spend so much time alone, I could go into my room when I was younger and spend hours by myself, reading or whatever. I never needed somebody around. I’m still like that. I’ve been living on my own for about 10 years now. At the same time, when I need to be around people, I need it right then. Sometimes they’re not always available, and sometimes that gets me down, too.

I guess I’ll go with how other people describe me. Those people say I’m beautiful and smart and caring and care about kids and empathetic and sympathetic and would give anybody the shirt off my back if I needed to. And I just don’t like to draw attention to myself, which is hard because at 5-10, it’s hard to hide. So I learned to start crouching, hiding myself, I didn’t want people to notice me, not realizing that 5-10 is a gift. That’s kind of where it all started. I like to think I’m someone people can come to. I didn’t realize I needed to go to people.

How old are you?

I will be 34 in April.

How has the past week gone, and how did it get started?

Well, very emotional. A lot of crying, but also a lot of happiness, which is a word I have a hard time using. I discovered I wasn’t happy. I think three things made this happen. One of them, I will be vague, but it was a man I dated in January. I could tell he had issues, too. I decided to ignore those issues. Maybe being with me would help him. It turns out that he decided he couldn’t do it anymore. He unfortunately had had marriages end because of infidelity. He’s been overseas with the military, so probably there are some issues there. I don’t talk to him anymore, so I’m not sure it’s ethical to speak of that. He ended it with me, so I started wallowing: “I don’t want to get out of bed, why me, why am I being rejected again?” It’s something that’s been going on my whole dating life. I’ve been rejected a lot. I discovered I’ve been finding the wrong guys, I’ve been dating those wounded guys and trying to make them happy, but I’m not happy myself.

My sister, I love her to death, she’s 26, one of those people who can just let things go. If it bothers her, she doesn’t show it. I have no idea how she does it. She came over last weekend, and I was in my pajamas, wallowing and upset. At first she was like, “OK, I’ll accept it,” then she was like, “Look, you’ve got to stop being unhappy. You’re never going to be happy with someone if you’re not happy with yourself.” I remember thinking, “Do you think I like being like this? I wake up and think, ‘OK, I’ll be depressed today?'” She laughed, and I started thinking, “What makes me happy?” I couldn’t think of one thing. I’m 33, I’ve got a great life, but I couldn’t think of one thing that makes me happy. I started sobbing, then I realized that I don’t allow myself to be happy because I feel I don’t deserve it because of what I did to myself and my family eight years ago. And I said, “I can’t do this anymore. I need to be open about what I did.”

The third one was really how I found your website, Attemptsurvivors.com. I liked the TED Talk on Facebook, the one JD Schramm posted. I was watching and, oh my gosh, this guy had all these successes in life and admitted he tried to kill himself. And I was like, “Thank you!” I was like, “Maybe that’s what I need to do, admit that I’m ashamed and embarrassed of what I did and look for ways to make it better.” At the same time, I’m tired of hiding behind it. And it’s been, like, a weight has been lifted off my shoulders, honestly.

I went to my dad and my stepmom. I talked to them: “This is how I’m feeling.” They listened and were very supportive and said whatever has to be done so I find happiness. They knew I was upset a lot, was still depressed, but they didn’t now how to bring it up. And I went to my principal and said, “Look, this is what I plan on doing, there’s a possibility of it getting out publicly, and if so, I have to do something about it, because I teach kids.” Also I told him, “I’m going to start doing this, I want to be an advocate, speak out in the mental health community. I want people to know it’s a problem.” And everybody I talked to so far said, “I’ve got your back,” and then they said, “Yeah, my friend is bipolar” or “Yeah, I know somebody.” People just don’t talk about it because they’re uncomfortable.

How will you do this?

That’s the good question. That’s what I’ll have to find out. This is my first interview. A good way to get started. I looked into getting training with ASIST in Seattle. I’ve been looking at NAMI websites on how to get involved. I’ve been on the AFSP website, they have the Out of the Darkness walks, they have one in Seattle, maybe I could sign up for that and get people for that. I could advocate in my state, get public policy going for people with mental health issues. I’ve been on the Waking Up Alive website and talked with Sabrina. She emailed me back saying, “That’s so great, here’s how you go about it, just take classes and be knowledgeable, and if you want to help people, you have to have that training.” She also said, “You have to be into your recovery process because this will trigger emotions.” She was really helpful. And I’m talking to spiritual leaders. I have a weird relationship with God. There’s times I’m totally religious, yeah, and there’s times I want nothing to do with religion and God and spirituality, and maybe it’s time to start fixing that. I want to look into a new relationship with God. I’m seeking grace and atonement, and maybe I need that from God, too. I’m looking into all these possibilities. I’m trying to find some way to get my voice heard.

What has been your experience with recovery?

Well, it’s been eight years, actually this week, and I thought I was fine. I thought, “OK, I’m out of the hospital now, I’m going to start some heavy therapy, meds, life is good, I’m alive.” I spent the rest of my 20s thinking life is good, but I kept trying to fill a void. I was filling this void, I was trying to be happy, but I was doing things that actually were not making me happy. I thought, “OK, if I can get into a great relationship and get married, I’ll be happy.” Well, that’s not true. I got in the habit of dating guys with issues like me, wounded. I was going through this cycle of constantly finding these guys. I went through a process of buying stuff. I went through bankruptcy because of it. I was buying material items. I got that under control. I’m doing well financially. I’ve decided to take myself out of the dating pool and strictly focus on me because I don’t think maybe I am completely recovered. This last week, I discovered I don’t like who I am. I’ve been telling people I’m ashamed and embarrassed. I haven’t asked for forgiveness from anybody, hiding behind what I did in hopes it would go away, maybe it didn’t actually happen. What I really need to do is address this act.

So to answer, no. I don’t think I’m fully recovered. I never did it again, I won’t do it again. I continue to see counselors, take meds, but every couple of months I get into some times when I get really down, and I know it won’t last, but at that moment in time, my brain is telling me, “I don’t think it will get better and I don’t know how to be fine,” and I think, “What if I decide to do it again? I don’t know what I’ll do.” My parents and sister said their first thought when I get down is, “Oh no, will we get a phone call again?”  I decided I need to start addressing it and talking about my experience. Luckily, I now recognize the triggers that get me down.

Did they know when it happened?

Yes, the only people that knew were my mom, my stepmom, my sister, my dad, just very immediate family members. And I had two friends that knew. I work at a really wonderful school, it’s like a second family there, I’ve been there seven years, very supportive, caring. They know I have anxiety issues, I can get depressed, but they don’t know my past. I’m ready to start telling them, I guess.

My parents knew. They were there. I have some fuzzy memories of that week: ” You guys didn’t visit me at the hospital,” and my dad’s like, “No that’s not true. I distinctly remember talking to a doctor who was saying, ‘Should we put her on a liver transplant list? How do we know she won’t do it again?'” Instead, I was put on an experimental liver program to clean out my liver and kidneys. The only person I remember being there was my mom. I never asked her how she felt. The other night, she came over, and I was explaining what I’m doing. She looked at me and said, “Alexis, I forgave you a long time ago. You’re my daughter. I was upset and angry, but you’re my daughter.” I was like, “Wow, she forgave me.” I was kind of stunned.

Since then, you’ve talked to other family?

Yeah, my dad and stepmom said they had never forgotten about it but forgave me. The reason they swept it under the rug is because they thought I had. So they never brought it up. My uncle and aunt were very supportive. I went to them and said, “I have issues,” and they said, “Yeah, we’re praying for you.” I honestly can’t remember who knew aside from my immediate family and a couple of friends. Other than that, I’m gonna have to feel it out and see.

You mentioned feeling embarrassed and that you have to atone for what you did. Why? If it’s a health issue …

Well, I don’t like upsetting people, and I do understand that it is a health issue, but I feel that I should’ve been able to make a better choice and instead, I gave up. I very rarely give up on anything or anyone, and I gave up on myself, which is not the human spirit. I allowed my disease to take over, and I succumbed. I lost my pride. That’s where the embarrassment comes from. My cousin died of cancer two years ago, and he never stopped fighting, and he never gave up his will to live. How come I couldn’t do that? Waking up and being alive and continuing to live and make improvements should’ve made up for the embarrassment and shame, but it didn’t. Now, I’m admitting I’m not always strong, I am human, I make mistakes, and now I want to come out from that and let others know that hiding only makes the inner pain worse. Maybe the human spirit is also being strong enough to say, “I’m not as strong as I thought.”  I’m not sure if any of that makes sense.

Do you still live in the same community, the same location?

Yes.

What kind of response do you expect to get in the community?

I would hope it would be positive. One thing that really bothers me is that the media portrays people with mental health issues like we’re crazy and unstable and violent, we snap and go shoot up schools and all this stuff, and every time I read the comments and see what the media does, it makes me so upset. They’re lumping us into a category that’s completely not true. Unfortunately, with social media our lives are everywhere, and there are going to be some negative responses … But the majority, I think, will be supportive, will say, “Hey, that’s brave of you” and start telling their own stories, “Hey, sometimes I get really down” or “Hey, I have a mom or grandpa,” and the stories will come out because finally someone says something. I guess time will just tell. It’s not like I’m going to go on Facebook and say, “Hey, everybody, guess what I did eight years ago?” Some parents of my kids are on my friends list. I’m starting very slow, with my inner circle, and I hope to branch out from there.

What steps are needed to really open this door?

I liken it to the fact that the civil rights movement, how long that took for Martin Luther King and Rosa Parks and all of those great people that finally got the discussion going about civil rights. And I think about how in the ’80s with AIDS and how long it took to get the word out and prevention and those living with HIV or AIDS are not bad people. And you think how long it’s taken all these issues. Honestly, something like this is not gonna happen tomorrow. Like with the media, they badmouth it so much and portray it in a light that’s not fair. The stigma and taboo that go along with it: “I don’t want to say anything until someone else comes out and has the courage to say it.” Maybe that was the issue for the past eight years. I didn’t want to be called crazy and have people think I was violent or something. And I’ve been called crazy, for real, and it hurts. Even when people are joking and don’t know my past, I kind of laugh but think, “No, I’m really not. I have a disease. You can’t see it, but it’s still there, and I deserve to get as much help as someone with cancer or other horrible disease.”

I don’t know. That’s why the only thing I can do is reach out and get myself out there. I hope people will say, “Wow, I can’t believe you’ve been suffering for that long and didn’t say anything.”

What been useful in your treatment, and what hasn’t been useful and should be changed?

I was diagnosed when I was 19. I had my first panic attack. I thought I was having a heart attack. I went to my regular primary care doctor, and she was like, “OK, we’ll put you on pills” or whatever it was. Then it was like, “OK, see you later.” She didn’t say counseling or anything. I went on this medicine, things were fine, but as I was getting into my 20s, the pressures of life honed in on me. I graduated college, tried to find a job, my parents divorced, and I decided, “OK, maybe I need to seek out counseling, too.” I’ve been through many different counselors, I’ve been through many psychiatrists who say, “OK, maybe we up your dosage or reduce it or put you on another one.” And I say, “OK, you guys are the experts” and I go with it.

I think it’s good to have that there, to have someone to talk to, but I think they need to be on the same page. Some just let me talk but give no suggestions. The one I have, she’s very good, she lets me talk but gives me suggestions. Journaling, exercise. She wants me to get better. Apparently, she didn’t know what I tried to do, and I told her the other day. I started telling her what I want to do and she said, “That’s great, we need more people like you to start talking, and helping,”

But to answer your question, yes, the drugs have helped. I don’t get the horrible panic attacks. I don’t get into as deep, dark holes I don’t think I can climb out, like eight years ago. I know there’s a light at the end of the tunnel. The one thing that doesn’t help is the friends who say, “You know, happiness is a choice. You just have to choose happy.” I would give anything, I’d give everything I have if I could just choose to be happy and let it all go, but I can’t.

There’s just no money out there for those programs. To get appointments even with my counselor, it’s just weeks out. That’s how busy they are. I couldn’t find support groups in my area for after suicide attempts. I would have absolutely no idea how to start a group. One thing my principal suggested, I guess there’s a program called Celebrate Recovery, like a church-based 12-step program, basically like AA but for anybody who feels they need to recover from something, just anything. I said, “That’s great, how come they don’t put it out there more? It’s free, with churches. There’s just nothing out there to advertise it. Plus, you have politicians who say, “Cut funding for health care, cut veterans benefits.” They think if you get rid of it, it just goes away, but it’s just making it worse.

Oh, I just thought of something. Other things that help is just knowing people care. When I do finally start talking to people, say, “Hey, I’m having issues,” I have people who say, “Hey, if you ever have to talk” … I put on Facebook that I was having issues, and a colleague messaged me out of the blue and said, “Hey, I’m here.” And I said, “Yes, I’d like to talk. You’re taking time out of your life to help me?” It just felt really good to see people care. I’m really hard at accepting help: “No, I don’t want to bother you, I can take care of myself,” but maybe they’re offering because they really do care. I’m starting to realize that now. My dad, my principal, say, “If you need to talk, come talk to us, please!” And that is very comforting.

I’ve always been that person: “I you ever need to talk, please call on me.” We live in a world where people just want to think they can take of things by themselves. That’s how I am. They don’t want to look helpless, I guess. They want to look like, “Hey, I’m strong.” But when it comes right down to it, everybody, some of us are just dying inside and putting on a happy face. If we knew people cared, maybe people would start talking.

I think about bullying, being an elementary school teacher, bullying is such a huge deal. They’re projecting what they don’t like about themselves in an effort to make themselves feel better, not realizing they’re hurting the person they’re bullying, like a vicious cycle.

Do you ever see anything in your students, issues that concern you?

Yes. I can’t go into too much detail, but I have students who don’t get any support at home, don’t get nurturing, and they get attention anywhere they can get it, any attention is good. I think about those kids as they get older, what will they do, will it be good or bad? I have kids who already suffer from anxiety, and wow, they’re already suffering from anxiety from the pressures of life, to perform, and I feel for them because I know exactly where they’re coming from. I just let them know I’m here. Being the child of divorced parents, I say, “Hey, I’m here for you.” Most probably won’t take me up on it, but just being able to tell them they know somebody who really cares about it …

With your other issues, is 5th grade the place to connect?

Unfortunately not. Even though I am their teacher, I still … And I know it’s out there, I was doing some statistics-searching and it’s the third leading cause of death from 10- to 24-year olds, and I was stunned by that. That a fifth grader would think about that. But I don’t think it’s my place to talk about that unless I got permission from my parents. I think it’s more likely in junior high and high school. But as a teacher in 5th grade, I would feel uncomfortable because I don’t know what I could say, liability issues involved. That’s why we have counselors, school psychologists and, to be honest, why we have parents. We live in a society where everything’s out there. Parents really need to have that dialogue with their kids. I can honestly tell you I know of students at my school who unfortunately suffered the loss of parents because of suicide. And I could never say anything to them because I don’t know how they’d react. I mean, divorce is fine because everybody knows about it. But there are still some things these days we can’t touch upon. Maybe in 5,10 years that will change. Eventually the dialogue maybe needs to be there. Just not right now.

What will you do for yourself? To change?

Actually … Gosh. I don’t know how to go about that. I spent most of my life taking care of others, helping others. I have to figure out what makes me happy. Teaching makes me feel good, being around kids, laughing. Feeling successful makes me happy, but those are all fleeting moments. I’m not sure how to do “happy.” I think if maybe I get my story out, someone will say, “Hey, I heard your story and I decided not to go along with my plan. I’m going to try and get help.” In a way, I guess, that could make me happy.

I like being there for other people. But for myself, I just need to learn to be selfish. To me, selfish is a bad thing. I need to start taking care of myself, exercising … Gosh, I don’t know. I just need to stop being afraid. There are times I don’t like going out in public because I’m afraid if they’re looking at me, judging me. I have to say, “Hey, they look at you and then they’re gone.” That’s what I think this journey is. I need to find that inner peace and go to bed and say I’m happy. And I can wake up and say, “I’m good, this is who I am, and I’m dealing with it the best I can and helping others in the process.” I need to be able to be content with that. I have my support group. I’m not sure how to get there. Maybe a better relationship with God. Maybe recognize the warning signs that get me depressed and get away from that situation. That’s a loaded question. But I do know just in the past week I’ve felt better than I’ve probably felt in a really, really long time, and that’s the first step.

Where I was eight years ago and where I am now, it’s a complete improvement. Back then, I was in a dark hole. I really felt just there was no way out. If I took myself out of the equation, the world would be a better place. I had all these issues going on in my head. It just mushroomed. I didn’t plan it. I know a lot of people do. I didn’t. I snapped. I remember driving home sobbing, thinking, “Please, a car just take me out, something.” I remember swallowing Tylenol by the handful and thinking, “OK, it’ll be done.” But now I can say, “Yeah, I’m much more content than I was.” But I know I still have a long road, and I know I will never, ever do that again because I know I can pick up my phone and talk to somebody, and I know now in the past week that people will say, “Great, let’s talk.” And I thought eight years ago nobody gave a darn. And I know now it’s wrong. I just wasn’t willing to ask for help. And now I’m willing to ask.

I’m sitting here looking at my apartment. I have pets now. After my attempt, I got a cat and thought, “OK, that’ll help.” And that was the greatest thing I’d ever done. Then I got more. They are therapy, too. They need me like I need them. I started improving my job, getting better as a teacher, and now I’m an awesome teacher. Everything is good, and now there’s this one thing I have to do. I have to say, “I’m Alexis, I suffer from depression, I tried to take my own life and, you know what, it’s going to be OK because now I’m willing to admit it. And if you need to talk, I’m here for you.”

Who else are you?

I feel that I am somebody whose journey is just beginning. I’m gonna be 34 in April, and I thought my life started when I graduated from college and got my first teaching job. It turns out that’s a great part of my life. I can look in the mirror and say “Wow, you’ve made it,” but maybe my life is starting right now. I’ve questioned that a lot, asked, “What is my purpose in this world?” I thought it was to be a teacher, and it is, or half of it is, and maybe the other half is I need to help other people like me, and maybe this sounds like a cliche, but changing the world in some small way. Everybody changes the world in some way, either they do it quietly or with a lot of show. Maybe I’m just finally realizing what I’m going to do with the rest of my life. And maybe it’s not what i thought it would be, but that’s OK.

Maybe in another year I can give another answer to this question, a better answer, but now it’s completely new and scary, and there will be times I will ask, “Why did I decide to do this?” but at the end of the day, I’ll say, “OK, this is me and I’m doing the right thing.” But you know what, I don’t want to be that person who gets down by that and retreat into myself. I know now there are places and people I can talk to and be more open. So yeah, it’s a hard question to answer. I think I’m gonna be … I’m gonna be different. I’m gonna be a new Alexis, and now I have renewed hope and faith for the future.  Yeah.”

Talking with Sandra Kiume Dawson

The Canadian activist who tweets at @unsuicide has built a peerless guide to the online world of crisis response, and she’s done it on her own time with zero budget. Here, Sandra Kiume Dawson discusses suicide hoaxes, what Twitter does wrong, the need for transparency, why hotlines are outdated, and how to walk the oh-so-careful law enforcement line between tracking people down for help and scaring them away.

Sandra also makes a special note about why trained peers like herself are crucial online. “We’ve seen the darkness, and it can’t get any darker,” she says. “I’m not afraid of it. I can hold someone’s hand and guide them out of it. And I think there should be more safe spaces like that.”

Who are you?

My name is Sandra Kiume Dawson. I’m a suicide attempt survivor, living with bipolar and other conditions since I was 7. I’ve had multiple attempts. Through treatment and self-education, I’ve learned a lot about suicide prevention, both from the standpoint of suicidology but also from more grassroots efforts. I have a part-time job as a mental health blogger at PsychCentral that helps ensure I keep current with mental health news.

Suicide is not the only topic, but I often write about it. I also have a wiki, Online Suicide Help, which is a directory specializing in e-mental health services, crisis IM chat services, social media supports, peer support forums and more. There’s quite a lot out there and more all the time. I’ve collected these resources into one place so people can find them easily. Another thing I do, I’ve been on Twitter since 2009 as @unsuicide, a peer support suicide prevention account. I’m not a trained counselor, but since I have lived experience and a lot of knowledge of the mental health systems, I can help people navigate both online and off to find supports.

A typical conversation with someone on Twitter is something like, “I have a plan to kill myself.” I’ll say, “Do you want to go to the hospital?” “No.” “Do you want to call a hotline?” “No, I don’t want that. I’m afraid the police will come knocking at my door.”

Or, “I have anxiety; I don’t want to talk on the phone.” That’s where online services are helpful: texting or IM chat services. It’s great to see more and more available. But I also refer people to peer support, because often people are more interested in peer support than professional help, or they want both. People want to know others really understand them; they can talk to someone who’s been where they are and have recovered. That provides a lot of hope, makes people less alone. Feeling suicidal is a very isolating experience, and so anything that makes you feel less alone is helpful.

Where did you come up with the term “unsuicide”?

I thought it was catchy and reflected my goal of people proactively preventing their own deaths. Unsuicide as the opposite of suicide.

When did you start pulling all these resources together?

I started on Twitter in 2009, and created the Online Suicide Help directory in 2011. I had already been bookmarking resources for over a decade.

Do you have everything?

No. I don’t pretend to be completely comprehensive. I’m continually searching for more, and asking people to share links. And there are always more services coming on board, especially with crisis chats.

Do you have measurements of users, traffic, etc.?

I do keep track. I get about 6,000 hits a month and have 15,000 Twitter followers.

Who comes to you?

With the wiki, it’s really worldwide. I’ve had visitors from 158 countries. The tragic thing about that is that while I’m aware of the worldwide need for online services, they’re not always able to access services because of geoblocking – restricting services to one country or even a single town. There’s a huge need to create an international network so people in, say, Mongolia or Malaysia or Ecuador or, you know, any country that doesn’t have the money to start their own services, can access help. People are desperately searching, and it’s devastating when they find there is a service but it intentionally won’t serve them.

Do you get paid at all, and how much time does this take?

No. I don’t get paid for this at all. How much time is really variable. I will check usually every day to answer tweets, share links. I would guess an average of maybe an hour a day, two. If someone contacts me to talk, it can take more time.

What has been the response from organizations you reach out to?

The IASP at least wrote me back. A lot of organizations don’t. I’ve tried writing to organizations that completely ignored me, like the Samaritans in the UK. It’s been frustrating because I don’t have a Ph.D, I’m not a suicidologist, am not employed by an organization and I don’t have credentials. And because of that, I think they’re not willing to engage with me.

You mention that you’ve had the experience?

Yes. It doesn’t make a difference. There have only been a handful of organizations that have taken me seriously. Crisis Chat is one, in the US.

A big exception happened recently with a petition I started to ask the American Foundation for Suicide Prevention to change the language of “survivors of suicide” to “survivors of suicide loss” or “the bereaved” in their events and literature. Once it reached 100 signatures, I contacted the CEO, Robert Gebbia, and he was very responsive and respectful and agreed that the language needed to change. I look forward to that happening soon.

What more would you like to see?

An organization that involves and includes users, by which I mean Internet users and app users who are also mental health service users. I see sometimes that organizations will engage stakeholders and say, “Oh, we’ll bring in a couple of people with lived experience and see what they think, or do a focus group,” but those consultants are not always on social media and seeing what triggers people in that realm. It’s people who don’t necessarily know the online landscape. Without mentioning an organization, I saw this just recently and it was really discouraging. I think people with lived experience who are brought on board need to have certain qualifications. Not academic, but the right experience.

In terms of diagnosis? Or what they lived through?

What they lived through, and what type of services they’ve engaged with in the past.

Have they used online services, do they know what they’re like, the barriers involved?

Just pulling someone out of the hospital randomly doesn’t mean they know how a crisis chat operates, or what kind of supports are on Twitter or Reddit, or the pros and cons of texting vs. IM chat.

Do you have a roll call of favorite resources?

Yes. There’s a service called Youthspace.ca for Canadian youth under age 30, which is actually problematic as a lot of online and texting services are just for youth and adults are often left out. They’re a great site, with texting, chat, a forum and trained counselors. IM Alive is now available 24/7, which is fantastic, and I’m also fond of Crisis Chat. But both those services are for Americans only. I wish I could recommend a peer support service, but I only know a few services that aren’t specifically for suicide. Real-time, peer-led suicide prevention intervention online almost does not exist! There’s one tiny service in the UK, but that’s all I’ve found beyond social media, and those people are lacking organization, training and support. There’s such a need for this. The professional peer support specialist community has not seemed to recognize this need yet, or has not acted on it. Professionalized peer support is only available offline.

How much do you think traditional nervousness around suicidal thinking affects not innovating?

I think it causes a rift because traditional services are hesitant to bring lived experience on board. I think in America it tends to be even more split: peer-led groups tend to be doing their own thing, as often they have a history of antipsychiatry activism. And possibly for that reason, the peer-led organizations – I don’t know, I’m just guessing here – but they’re maybe not privy to the same research that other suicide prevention organizations have access to. So maybe they’re not as up with changes in technology and demographic trends. I’ve noticed, too, that not only have I had trouble engaging with the traditional organizations, I’ve had even more trouble getting cooperation from peer-led organizations. There’s a schism that they’re suspicious of anything to do with psychiatry, and they want to do things their own way, and if you’re working within or advocating the medical model at all, you’re suspect. At least, I’ve been shunned before for that reason.

So that’s why I’m kind of doing things on my own here, you know? It’s frustrating. But if suicidologists don’t want to work with me and peer support activists don’t want to work with me, it hasn’t stopped me from doing a lot on my own.

But you’re on a national consumer group in Canada, right?

I’m a member of the Mental Health Commission of Canada Advisory Council. It’s not a consumer group, but I’m one of three members with lived experience on the council. It’s really exciting because I’m now included in high-level strategic discussions for national mental health policy. People with lived experience are not often involved at that level.

How did you come across each other?

I was already on their e-list. They put out a call, and I was one of almost 200 applicants.

Again, are you being paid?

For the advisory council, I receive a per diem plus travel expenses, yes. For the work I do on my own, no. I can’t expect to be paid for something that’s my own initiative. But I don’t mind, I can do a lot on my own. I went to an e-mental health conference last winter and showed a researcher my wiki, and she was just amazed I had a budget of zero. They spend millions to create a website, and to me, that’s such a waste of money. I can make a
site for nothing. So I did.

Where else would you like to take this?

I’d like to see what I’m doing expand into an international network with the cooperation of Twitter, as well as law enforcement. That’s beginning to happen now, but I’d like to see more peer involvement in the design and operation. When people have already announced they’ve ODed, they need immediate medical attention, and there’s no way to get them care if you can’t track their IP, which only law enforcement can. It’s really frustrating when people leave suicide notes and you can’t do anything else. Twitter is not helpful, all they do is send an automated DM telling the user to call a hotline. A new approach involves cooperation with social media companies, law enforcement and professionals who do counseling online. But it’s also critical to have peer support and lived experience advocacy in that equation. I see a lot of people afraid to talk to nurses and doctors, and even more afraid to talk to police. Peers have empathy, they’re not as scary, they understand and they can have intervention skills training. The right person with the right training and experience can be even more effective as a crisis counselor than someone who doesn’t have that lived experience.

What’s the ideal way to involve cops?

I think there needs to be rational discussions between people with lived experience and the police to see what those boundaries are. For example, many people don’t know the difference between self-harm and a suicidal act. They see a tweet “I just cut myself” and see that as a suicidal act, and if they brought in police to knock on the person’s door, it would be inappropriate. To have that knowledge, to know when intervention is warranted, is vital. Otherwise, you just scare people off, and they don’t trust you anymore. Phone hotlines have this problem, they have a reputation as being untrustworthy because they call police, and it’s a big part of the reason people I talk to refuse to call a hotline. It’s hard to know when to make that call.

Are online crisis services more transparent about their policies about contacting police?

Some are, but generally not that I’ve seen, no.

How do you work with law enforcement?

I’ve only called police a few times since 2009. I don’t involve police unless an attempt has already taken place and the person is unresponsive. One was an example of someone who left a suicide note and left enough clues on their timeline that I was able to figure out where the person lived. I called police, they checked it out, and it turned out to be a hoax. It’s surprisingly common. Another time, a girl, a teenager I had been talking to for over a month, was really depressed. She was saying how she was going to kill herself on her birthday. It was coming in three weeks, two weeks, one. I kept trying to get her to go to a school counselor, any kind of option, but she was not willing to do anything. She just kept coming back at me with, “I’m going to kill myself on my birthday.” When the day arrived, she left a suicide note on her timeline. That was it. I called police. They tracked her down at her school, and she was super mad at me. She deleted her Twitter account, and I never heard from her again.

She was OK?

She was alive.

Did law enforcement get back to you?

No. But she had made so many threats repeatedly, and she was so unresponsive that I felt involving police to get her to help was warranted. There was a similar incident with another girl but not enough clues about location, and when I phoned police, they said no, because it’s on the internet they can’t do anything. They brushed it off. That’s been a barrier to working with police. Unless they know an exact street address, they don’t respond. They don’t have access to Twitter’s user data. Fortunately, that’s changing now with the new Real Time Crisis service.

Why are suicide hoaxes surprisingly common? Why would someone do it?

I can only guess, as I’ve not read any research on the topic. But basically, it’s for attention, it’s to gain more followers or specific followers and get sympathetic messages encouraging them to live.

“Celebrity blackmail” is one very common reason behind a suicide hoax, especially among youth, but I’ve seen it happen with fans and stalkers of any age. The person will send a tweet to a celeb saying, “If you don’t talk to me/follow back/RT me, I’ll kill myself,” and it’s purely to gain the attention of their idol.

Another category of hoaxes comes from people who are genuinely disturbed, trying to gain attention for a personal issue in which they’ve felt silenced. They may tweet repeatedly to mass media accounts as well as anyone who will listen about being victimized by something, and sometimes make suicide threats.

I think someone who creates a hoax does have issues to look at, it’s not something a healthy person does just for fun.

You say Twitter isn’t responsive. Is that the same for other social media companies?

They all have different policies.

How hard would it be for them to make the changes you’d like to see?

It’s a technical issue, isn’t it? On one hand, you don’t want just anyone to say, “Oh my friend says she doesn’t like her life,” and send the police. That would not be a good approach. But if it’s a matter of, there’s a safety team already online and doing outreach and identifying when there’s a real, bona fide crisis and there’s a life in danger, an attempt has happened and a person needs immediate medical care, that’s where I would like to see Twitter and other services working with police and peers. And it’s coming, slowly.

What are the risks involved?

Of service users becoming less trusting of people like me. Right now, people trust me because I’m one of them, I have empathy and I’m not a police officer or a doctor. I don’t want people being afraid to contact me. Transparency is really important. One problem with hotlines is people being afraid of police being dispatched. Some hotlines have different policies. Some will send police and some have confidentiality policies. It would be better to know up front, because people have been quite traumatized by police showing up at their door unexpectedly.

Have you reached out to crisis lines on that issue?

No.

Here’s a question I’ve had a lot: What is a good suicide forum online?

It depends on the kind of support you want. I have close to 100 mental health forums linked in my wiki. Specifically for suicide, there are a couple I don’t recommend, but Suicide Forum is a good one. I also like PsychCentral’s forum, it’s a major one, but it’s not for suicide talk. It’s good for issues of depression or anxiety. You can dance around it, but you can’t mention suicide.

Why tiptoe around the subject in forums like that?

I wish they didn’t! It’s because of the fear of triggering, but where do you go if you can’t talk to peers, right? That’s why projects sometimes turn up on their own with their own rules. And that’s where my Twitter service comes in. People can say anything they want to me. I don’t get triggered. I think those who’ve had attempts are less afraid of talking about it. We’ve seen the darkness, and it can’t get any darker. I’m not afraid of it. I can hold someone’s hand and guide them out of it. And I think there should be more safe spaces like that. I guess that’s what hotlines are for, but they’re so outmoded, and they’re not peer services.

One thing I’d like to see, if we’re talking about alternatives: safe places to go and talk about suicidal feelings without the risk of being forcibly taken to the hospital. 24/7 crisis respite services with peer support and clinicians where people are free to talk about their feelings and not afraid of being institutionalized, even though that fear is often based on stigmatizing old stereotypes and not the reality of modern hospitals. It would be good to see that concept online as well. If you’re going to build a peer crisis service, with warmlines, etc., why not make them online services as well? Demand is there.

I’m not afraid of hospitals myself, and am not anti-psychiatry. Medication works very well for me, and I’ve been in hospital many times without any abuse. It kept me safe and saved my life. But I recognize that there are a significant number of service users who are afraid of hospitals or who had bad experiences and don’t want to go back. They should have an alternative.

How do you protect and take care of yourself when working with people in crisis?

For one thing, when I hear some of the negative things commonly expressed, I can recognize them as symptoms of depression, bipolar, whatever the person is dealing with.

A lot of people I talk to have borderline personality disorder, for example, which I used to have but recovered from. So I know the symptoms. When someone says a statement I recognize, I encourage perspective and insight.

I’m also very good at self-care and managing my moods and reactions to triggers, and when I feel fragile I simply don’t log into @unsuicide. I take a break from it for as long as I need to. I have the flexibility and knowledge to do that.

How did you get better?

It wasn’t simple. It was a multi-stage process. Finding the right medication combination and adjusting when needed, with the help of my doctor, was essential, but that’s not the whole answer. Lifestyle changes were critical: regulating my sleep cycle, getting fresh air and sun, lots of nature. Parks and trees are good for me. Moving to a quiet community that was a less stressful environment was helpful. Whatever I can do to lower stress is good. I also went through both CBT and DBT therapy, which were very helpful. I practice gratitude, and really like mindfulness meditation. I have a lot of apps as well. My mental health toolkit is a formidable arsenal. And last but definitely not least, love and support from my wife has been amazing and so helpful to my stability.

Where are you today?

In a pretty stable place. I still have occasional episodes. I can still get triggered, but I’m careful about self-care and pulling back from things when I’m feeling vulnerable. I’m not on @unsuicide every day if I’m in a low mood. If I’m just feeling kind of jaded about things, not feeling very supportive, I’ll just say, “I need some self-care, I’ll be offline today.” People understand. I leave the link to the wiki: “Here are others who can help you.”

Who else are you?

I do jewelry design as a hobby, and I don’t know, I’ve been many things in my life. I’m an Air Force brat, I grew up all over the place. Then I lost and gained a lot of different jobs, so I can’t say, “I’m a (blank)” because I didn’t have one career. There was so much chaos. In the last 10 years or so, since going on disability, things have calmed down.

I’m a mental health advocate, though I don’t like that phrase so much because it’s so vague. I’ve been on the board of a mental health housing nonprofit society, I’ve worked for a homelessness and mental health research project and I have a part time job at PsychCentral. Never just one thing.

Anything else to add?

I see so much peer support available online in forums and chat rooms, but I see damaging advice being given, flame wars sometimes. And I think there’s a real need for people giving peer support to have some skills training, and I don’t know how that could happen in an unmoderated internet. On one hand, you have certified peer support specialists working one-on-one with people offline. On another hand, you have millions of informal peer supporters online, but those people have no training at all, and sometimes they’re giving really bad advice. They don’t have an ethics background, or trauma-informed care skills, and they often can be triggering to people. I just wish those certified peer specialists would merge with the informal peer support. Set up a free mass training system for mental health literacy and intervention skills, a free webinar, or a site where you can get a mini-certificate. If peer specialist trainers set it up, that would be the most logical thing to do. But right now, I basically see them ignoring the internet and not integrating it into their work. They’ve got to get over that. Mental health professionals are now routinely offering e-mental health services, and it’s time professional peer support specialists were doing it as well.

Talking with Joel Phillips

Joel Phillips’ turnaround came on a bike ride.

He had been overweight, inert, depressed. Enough factors fell into place to click him into a final decision: He would ride out to a quiet spot and shoot himself.

Instead, he returned that day in 2009 and has become a passionate advocate for biking in his Colorado community. He has shed weight and certain mental burdens from childhood. Now he can cycle 100 miles in six hours, which is about four hours faster than we can go.

“I let my mind get out of shape, like I let my body get out of shape,” Joel says. “You eat junk food, and your body doesn’t work right. It’s the same thing with your mind. Fill it with junk, and it doesn’t work right. I had to clear that out.”

He started telling his story earlier this year with a post in a bike forum, and it’s grown from there. He’s now one of several people featured on the ADDY award-winning Man Therapy website.

Please introduce yourself.

My name is Joel Phillips. I live in Lakewood, Colorado, in the foothills surrounding Denver. I was born and raised in Cheyenne, Wyoming. I was adopted by my parents.

How about your upbringing?

I was an inquisitive schoolboy. I think I presented certain challenges to instructors, when I look back at what I call my yellow-colored glasses. I asked questions people were not prepared for. In the third grade, my teacher scolded me for daydreaming. I said I wasn’t, and she said, “What are you doing?” I said I was thinking about what was going on in the battle we were talking about, which was Sherman’s March during the Civil War. August in Georgia must be dreadfully hot, those uniforms, they had no latrines, etc. I questioned my teacher, did more solders die from disease than battlefield wounds? I was told to stick to what we’re doing. I got bored really quick in school because I could easily remember names and dates. It caused some conflict. I started to create a world around me where I did was what was easiest for me at the time. As I got older, I realized that a lot of things came easy for me, so I was able to fool myself for a lot of years.

Fool yourself about what?

Oh, being happy, for the most part. I created these wonderful fantasy stories rather than deal with the reality that I had abusive parents. I was able to gain a lot of self-esteem and confidence through athletics. I was very involved in sport:  football, baseball, basketball, track, wrestling. I was able to maintain a presence of fairly normal, but on the inside I was trying to figure out a lot of things. It occurred to me no matter what effort I put in, the world would treat me the same way. So I kind of quit trying.

That was in high school?

No, there was a very specific event in grade school. It was around a paper I had wrote in fourth grade after we had moved to another house, a starting-fresh situation, and I wrote a report on escape velocity. The instructor wanted us to write something neat about space. I got interested in the actual rocket getting off Earth, so I wrote about the speed to break the Earth’s gravity. The principal was impressed and wanted to enter it in a contest, and he asked my parents to come in the next day. When I came home, my mom asked what I did wrong. She said, “The principal doesn’t ask us to come in for nothing.” I took a pretty bad beating from my parents that night. You know what, you told me to be on my best behavior, and this is the result? And I didn’t care anymore at that point.

And this carried on into older years?

It’s certainly the basis of the story I built my life around: No matter what I do, I’m not right. I’m a burden on everyone around me. Those thoughts permeated my life. That’s why I was in the situation I was in before I decided to take my life back. You can only have so much success when you’re afraid of having success. Because I was able to fool myself, I was able to talk to people, I was a good salesperson. In my late 20s, early 30s, I had a six-figure income. I started to believe this was not supposed to happen to me. I started looking for ways to screw it up. I was being late for meetings. And my safety net was disappearing. One big client did leave, and I lost nearly half of my income overnight. It was because one company was bought out by another and we were not the preferred vendor by that company, but because I was living by my story, I let all the things I was doing as a salesperson to insulate myself go. And I got a divorce. And that proved to me I was right. And I never took responsibility for things, because I had a great story to pin it on: I was abused as a kid.

Was that the beginning of your low point?

This was when I first started entertaining thoughts that I wanted to end my life. In about the year 2000. I just went for jobs with the least amount of responsibility and the easiest to do. When you’re in the printing industry, it’s hard to get a job anywhere else. I stayed in the industry, fooled myself I was happy. I met a girl, got married. This is an amazing woman. I’m lucky to have her, but I was not being fair to her because I was not letting her in, letting her love me, letting her family love me. I started to do things I did with my ex-wife.

And I got bigger and bigger. I go to work, I come home, maybe smoke pot and watch movies on cable, eat pizza. But Thursday nights I go out and play softball. But I couldn’t run the bases. I had to have an extra runner. As a kid, I could dunk a basketball. This was really weighing on me: Look at what I’ve done to myself. I had a hernia surgery, then gall bladder surgery. I thought I was having a heart attack when I had my gall badder surgery. I went through stress tests, and the cardiologist says, “I was gonna yell at you because you’re 378 pounds, but your heart’s in great shape. You won the lotto, but you’re not gonna stay like that.” So when the conversation came up, I needed to do more than walk my dog. Then my gall bladder went septic, and they removed it. In post-op, my general practicioner and cardiologist sat down with me, said that I was lucky, I have great markers for being as overweight as I am, but I need to do stuff. I finally say. “OK, maybe I’ll ride my bike at lunch.” And that was the end of that.

I started to grow deeper into my story: I’m not even worthy of being a shipping clerk at a printing company. I had one particular day where I mistook some info and didn’t get a shipment delivered on time. It really caused some big problems. It was the last straw for me: I’m even failing at this. I decided I would ride my bike at lunch tomorrow and shoot myself.

I went home that night, locked myself in the bathroom, wrote an apology letter to everybody I thought I’d hurt, and … I went to bed. And I had a peaceful sleep because I felt finally some relief from all of this. And I got up the next day, and I gave my wife what I thought was a last hug and kiss goodbye, and the last time I see my dog, and I went on that morning. I was very peaceful that morning and calm and calculated in everything I did. And I had gone to great lengths to make sure I wasn’t giving off any signs a person does who’s suicidal. I was very smart about reading what the signs were and avoiding them.

I left at lunch on my bike, fully intending to put the gun in my mouth and pull the trigger. I was riding towards Denver on the Platte River trail. And I rode underneath I-25 and across the river and turned north toward the amusement park, and that was a hill for me, a struggle. And whatever it was that kept me turning those pedals, that had me stop and take a look at a place _ it’s really beautiful where the Cherry Creek and the river come together, and you can see the mountains rise up _ and I got a taste of life right there. I remembered what it was like when I got my first bike. It wasn’t the bike, but it was I felt anything was possible in the world with that bike. And maybe for the first time since then, I got a taste of that. And I decided to ride more than do what I had planned.

About three weeks later, I told my wife, I said I wanted to ride my bike home from work. She said, “How far is it?” I said, “It looks like just over 14 miles.” She said, “You think you can handle it?” I said, “There are bus stops along the way. I think I can do it. I want you to give me ride to work Friday morning.” So we got in my truck that morning. After I dropped myself off at work, I reached with right hand across my body and grabbed the seatbelt and was able to buckle it, and I stopped. It had been 10 years since I had been able to do it. I had set the steering wheel a certain way so it wouldn’t interfere. I buckled it and was like, “Wow.” I hadn’t been doing anything but riding the bike. I did notice I had been wanting to eat better, not craving sweets. I wanted solid proteins. I started listening to my body more. The next thing I knew, I was able to sit up out of bed and put my feet on the ground instead of roll out. I had energy, my clothes were fitting better.

I decided I needed to look at what’s going on here, see what other changes I can make. I started examining what was going on in my life. I wasn’t training for nothing. I wanted to do something on my bike. I wanted to get more people like me to ride a bike. I would quit on myself, but I would not quit on other people. I started a site, Reasons 2 Ride, and blogged about what I was doing while training. I wanted to train for something crazy. I picked Ride the Rockies, a six-day tour over the mountains. Seventy miles you ride each day. I had a year to get in shape for that. I was doing it, and in the middle of that I thought, “How can I weasel my way out of this?” Then I had a stranger out of the blue who was following me and said, “I’ll come up and ride with you.” He was from Texas. I was like, “OK, I have to do it now.” So I did it. I didn’t ride every mile, but I didn’t realize what was the big prize. The big prize was doing what I did to get there.

I started getting emails, comments on blogs, media interactions that were extremely touching, how I had inspired them to take a chance at life. One person started playing the flute again, and their life’s happier because they go to the park and play. And I looked at myself and said, “I never understood why people listen to me. It’s not that I have anything to say, but when I’m engaged in life, playing it fully, I do so with integrity and honesty. And people can relate.” So I embraced that and decided to make it my life’s work, to get more people to ride bikes, to contribute to make a happier community for everybody. That’s the role I’m committed to.

And where you are now?

Now I teach a spin class three days a week, and the days I’m not teaching, I take other fitness classes. I do that in a group environment. Reasons 2 Ride has evolved into an ad agency whose campaign encourages people to ride more, with a network of businesses who are willing to offer discounts to people who ride a bike to their business. The website will have a mobile app. It’s social media, with me and interns out there interacting with people. And also, I started a nonprofit called Arapahoe County B-cycle. I’m going to manage a bike sharing program in the Arapahoe County area. It’s just taking it to the next level, having the confidence to do what I’m doing. I’m also working quite extensively with Landmark Education, I’ve done their Curriculum for Living, and I’m going to take part in their leadership program. This was an ontological view at life, what it means to be human in our relationships with each other. In these classes, seminars, I really learned how to get rid of my blind spots in life, fully express myself, be powerful about what I’m doing, be a cause for action, be a person for my community. It’s the first time in my life that I understand that I am my community, and my community is me. And now I life live joyfully. That’s the best word I can use.

How has your wife taken it? And your family and others you know?

Well, it was a big surprise when everybody around me learned I was at a point where I had wanted to commit suicide. That was something I couldn’t come clean with myself until really this year. They noticed I was a completely different person than the way I had been acting, but it was a person they’d always seen in me. The disappointment I had seen in others, what was disappointing them was they saw I failed to recognize the potential I had in myself. That was most disconcerting for them. That was true for my coaches, even educators. Because who I was as a person was not the person I had acted out in my life. That was the disconnect in the resistance I felt growing up. And I couldn’t see that because I had a tainted vision of who I was. And through Landmark, I’ve been able to see who I am for the first time and be able to act and speak in a manner that agrees with that. I like to think of it as those yellow-colored glasses. Have you ever put on yellow- or rose-colored glasses? The world takes on that tint, but after a while that tint goes away. That’s way I lived my life. I believed I was a burden, untrustworthy, those were my sunglasses, but after a while that faded into background. And now I was able to take those off.

The world occurs to me very differently now. I was able to make great peace with my parents. They passed away. I never let them love me. They did love me, but I didn’t accept it. It’s so emotionally debilitating not to let your parents love you. I was able for the first time to take a look at our situation from their side and feel empathy for them. They maybe were overboard with the beating I took, but what stresses were in their life that I didn’t understand? I was able to forgive them for making a mistake. I really got closure in my heart. It allows me to live. Like, if you have a wobbly tire on your bike because of a bad spoke, you tweak that spoke and everything runs true again. In my life, that was still a wobbly tire because I hadn’t let my parents’ love in. And just by acknowledging that, it kind of trued that wheel. It makes life easier as it comes at you.

I’m not saying everything is easier for me. My wife and I still struggle, but I’m able to accept what comes at me and, in the moment, choose to be happy.

You said this year you became open about your experience. Why?

What made that happen was, I was working with a life coach, and we were able to gain great avenues to getting to the root of why I was mad. I finally admitted to the story about the beating I took in fourth grade. And she called me out, she goes, “So what you’re trying to do with the bike program, the passion you have for that, there’s a disconnect here. You’re almost too passionate about this. It’s really overwhelming.” That’s when I started to say, “Well, the reason I went on that …” And I stopped myself. She said, “What?” I said, “Well, I told you about that ride I took, but there’s a reason I took it.” She said, “Because you promised your doctors.” I said, “That’s true, but the bike had been sitting at work for months.” And I admitted what had happened there. And she enrolled me in the Landmark forum.

And it was in that forum that people were sharing experience from all walks of life, from doctors to clergy to people like me. We learned that as human beings, we’re meaning-making machines. When something happens, we want it to mean something. That emptiness is so incomprehensible. And it’s through that process that we’ve created the world that we live in. All the racism, the hate, everything around us is, we created it because through our thoughts and actions we believe it to be true. And we can choose to not believe it to be true. And when I did that with my parents, that opened up the space for new and exciting things to happen in my life. To make the distinctions. When the voice in my head tells me to listen to my story again, I can stop it and say, “Wait a minute, what’s really going on here?” Mostly what it does it, it opens up my heart and soul to be vulnerable and truly be connected to people around us. To truly experience life, you have to be vulnerable. It’s been a big transformation. Allowing myself to be vulnerable in life has led to more joy than I thought I can ever have.

You mentioned still having difficulties sometimes. What kinds?

So I was let go by the printing company I worked at, almost a year after I decided not to kill myself and the spring before the Ride the Rockies. And so I’ve been working odd jobs, doing social media consulting, other things to scrape by financially, while I stay committed to getting Reasons 2 Ride and Arapahoe County B-Cycle off the ground. It’s a financial strain on us. That can be the source of so many other problems because there’s a lot of stress about it. However, my mental state of being, what I’m doing, my commitment, allows us to deal with the stress that can come up. We can handle it. It’s like a bike ride, not all rides are downhill or flat. Sometimes a hill is steeper than another hill. Keep pedaling, get to the top. That’s the philosophy I operate from. Rather than being attached to a certain outcome, I’m committed to an outcome, which means I’m doing what I need to do instead of finding an easy way or avoiding it. That’s where the stress comes from. Stress doesn’t go away. It builds up. If a bill collector calls, you talk to him, say, “Hey, this is our situation.” They’ll work with you. We can deal with everything life throws at us.

That feeling of wanting to end it all, it’s never come back?

It’s come back in, “God I can;t believe I thought that way once, how did I let myself get to that point?” And it re-empowers me to keep doing what I’m doing.

How did you get into Man Therapy?

As it happened, I gave a presentation to the city of Centennial about B-Cycle. My presentation was going to focus on all demographic and statistical info that painted a picture of a feasible, sustainable operation. But I didn’t want to do that because I had handed everyone a copy of the report that shows it’s worthwhile. “I want to convey to you how useful this can be to people.” I told my story, told how it could lead to a happier, healthy society. It was a left-field approach, but I guarantee each of those council people remembers my name.

That led to an introduction to a person in audience, his friend is COO of the Carson J. Spencer Foundation. They said “Wow, I really want to introduce you to our director, Sally.” We met, and what an amazing meeting that was. There’s something I can do to bring to the table of the foundation and Man Therapy. There’s synergy with Reasons 2 Ride. She asked me to share my story so she could put it on a blog, and I said, “No problem.”

Since then, I’ve come up with an idea for a fundraiser centered around … I love Man Therapy, so my brain immediately thought of “man cave.” So we’ll have a setup in a park, with a big-screen TV, we will have a punt, pass and kick competition, we’ll serve hot dogs and hamburgers and watch the Washington-Denver game. It’s gonna be really family-oriented. No alcohol there. We encourage people to ride their bikes, and I want to raise $10,000 for the foundation and Man Therapy.

And then the role I want to play is, I’m all about inspiring people to live a healthy, happy life, and I know what it can do for people mentally. And if sharing my story can prevent one suicide, I’ll share it a million times. I have cousins who committed suicide. And I’m getting to know their parents now. I had kind of abandoned my family, and now we’re reconnecting. And we’re really forming special bonds because they had children that committed suicide, and I almost did but chose to live. We share intimate stories, how I in some ways remind them of their son. And that’s very special to me. If I can bring a sparkle to their eyes just a little bit. This is what it’s about. I realize in making a stand for others, I don’t have to stand alone. And being a helping hand means I will always have one when I need one.

What have been some of the more striking responses to your story?

The emotion it evokes in others, I guess, has been the most striking to me. But just that, really, how caring and wonderful the people around me are. And I don’t just mean my immediate family and friends. And I think it’s because I’m really living life joyfully, and it comes through when I interact with other people. And I get to see a side of people others don’t get to see. Being vulnerable means others can be vulnerable around me. It’s easier to interact. I don’t feel afraid anymore.

What would you say to people whose minds are where yours was back then?

For me, it was like a light switch of emotion. Prior to deciding, I felt things had come to a head, pressure from all directions. In the snap of a finger, I decided I would do it, and it was calm over me. If you experience that, call someone. Tell someone. Tell them, because you’re a danger to yourself. You have the peace and resignation to end your life. I got lucky, I’ll be honest with you. Life slapped me hard. My legs were burning, my heart was burning, I got shaken out of what I was in. That’s my biggest advice. If you’re thinking about suicide, and all of sudden you come to complete calm, you’ve somehow made the decision to go through with it. You’ve come to the most dangerous point. That’s when you should seek help. And maybe signs of that are wanting to know what signs of suicidal people are, so you can avoid acting like that. Because you’re prepping yourself.

Is suicide something we choose or something that happens to us?

I chose to do it because I felt I was an overwhelming burden to others. I felt my being on Earth was a disruption.

Is this a mental health, mental illness thing, or a decision you made outside that?

I was diagnosed as depressed. That was the time when I was on antidepressants. But really, it all really came from living inside a story that I had believed about who I was. It was poor mental health. I let my mind get out of shape, like I let my body get out of shape. You eat junk food, and your body doesn’t work right. It’s the same thing with your mind. Fill it with junk, and it doesn’t work right. I had to clear that out.

I mean, god, you go on a 100-mile bike ride, it  takes six hours to do, and I didn’t want to think about how bad my legs were burning. It’s really easy to talk yourself out of a bike ride when that’s going on, so I wanted to do anything besides think about how my legs were burning. So I started going through my life: “What did I do that for?” I started to do the mental fitness part of my brain, too.

And that’s an interesting thing that you bring that up. One thing I recognize as a big problem in this country is, we are weaning out physical activity. Never before have we had more devices to avoid physical activity. There’s a big link, I think. We’re still mammals, and we’re still an evolved primate, and deep inside our wiring of our brain we have this desire and need to accomplish something, and what’s more, something physical. When we ride a bike, at our primal state, we’re accomplishing something physical. At our primal level, that’s satisfaction. And if the only thing we’re doing is getting into SUVs or electric cars and getting in cubicles and insulating ourselves there and coming back home, we’re missing something there. We even have schools cancelling PE, and our labor’s outsourced to different countries. Maybe this needs to be more seriously looked at. This is why I’m doing it. If more people get out and exercise, there’s the whole domino effect. Put physical activity in our lives, then some of the problems we have will start to disappear. It bothers me to a deep, deep level that we have a tragedy, and now it’s defined by how many people are shot in a public setting. We want gun legislation instead of talking about what in the world caused that kid to pick up a gun in first place. We as a society are easy to share our nightmares, our horrors, but we don’t share our most precious dreams. What would this world be like if more of us shared our dreams, rather than our nightmares?

What else would you like to do, accomplish?

Really the only thing I plan on doing is committing to helping create a happier, healthier society. As Reasons 2 Ride becomes more sustainable, it will be absorbed by the community, and i can move on to another project. I want to be a messenger of joy. We don’t have to be caught up in our stories. It doesn’t have to be a world of hate and un-health.

Who else are you?

I’m a class clown. I love it when I can make an absolute stranger laugh with a snort. I’m a big kid. Part of the reason I ride my bike is, I go to the park and get on a swing. A while back, my  wife and I were on the playground, letting our dog run around the jungle gym. They had this rock wall there, and I’m climbing on it. I said to my wife, “This was made for a shorter kid.” She said, “Did you just say that? Maybe it’s made for a kid!” And I was like, “That’s who I am!” I’m an adult that can still be a kid. And I don’t know who said we needed to lose that, but man, everything I do is so much more fun because I’m a kid.

Talking with Darick Reed

“I didn’t want to die on my suicide prevention walk. It kind of defeats the purpose.”

So there he was, Darick Reed, about 100 miles into an epic walk for suicide awareness and stuck in the biggest heat wave of the year. In remote Montana, too. He ended up in the emergency room being pumped full of fluids, and we recently spoke before he set out again.

If you’re driving through the West and come upon a young man walking along the road and pushing a double baby stroller, that would be him. He’ll explain the stroller below. Meanwhile, by now he should have something like 1,000 miles to go.

Please introduce yourself.

I’m 36 years old now. I just relocated to Missoula, Montana, to train for the walk. I lived in Las Vegas for several years and was homeless for four months. And then … My background essentially is, I’ve struggled with depression and anxiety and have been diagnosed with bipolar. What I put on my site is, in May of last year I had a suicide attempt which was the turning point in my life.

I was born and raised in upstate New York, raised by a single dad, and we moved around a lot growing up, where I think I got my itch to travel. I kind of got the adventurous side.

I started working with the American Foundation for Suicide Prevention, and they have these walks, these Out of the Darkness walks. I don’t know if you’re familiar with them, but they gave me the inspiration, after the second year I volunteered with them, to do a grand-scale walk to raise funds for them. The second walk I did with them was pretty … It really hit me emotionally, the people, what it was all about. I got inspired in 2012, planning this walk. I’ve been slowly putting it together. In May, I kind of made it official, put it out there, gave it a name. Here we are, I guess.

Talk a little about your project.

I will be walking across four states, from Missoula, Montana, all the way to … Originally it was Santa Barbara, but since the word spread, I think I’ll end up in Los Angeles as the finale. But yeah, along the way I’ll be stopping in communities, talking with media. I have a few speaking engagements in larger towns like Sacramento, Twin Falls, Idaho, where there are chapters for AFSP. So I have signs, a card with the website name, AFSP. It brings a lot of attention wherever I choose to stop, a gas station or somewhere to eat. Typically a conversation is involved. In Montana, especially, the suicide rate has been at the top of the nation for over 30 years. It’s good to let them know I’m walking for my state. I take it as it comes. I do my best to talk to as many people as possible. I walk and talk.

And you’re doing this alone?

Yeah, for the most part, I’m walking alone until I get into populated areas. I’m starting to build a little more of a following, with more people spreading the word. They want to walk a mile with me. Yeah, as the word spreads, they’re becoming more involved. Essentially, it’s just me. I can’t find someone else crazy enough to walk 1,200 miles and live out of a backpack.

Have you taken other epic walks before?

Not epic walks. Once I committed to this idea, I ditched the vehicle and walked everywhere, with weight, and with the inclination to get conditioned. Like today, I walked around the community and did errands and ended up with 15 miles. Yeah, just walking. We do it every single day, and it’s not really that hard. It’s just what I do.

How did you come to be talking to me?

I was probably in my early 20s when I noticed the symptoms and kind of sought help. I struggled with it well over 10 years. I divorced in 2002, and that was the start of the downward spiral for me. For a point, I lost everything from the divorce, went off the radar, so to speak. Hid. I stole my father’s truck and a bunch of money and went to Las Vegas for some crazy reason and chose to be homeless and hide from my family, and I was on the missing person list for a long time. It all came to a head last year, where my suicide attempt came into play, Although I had made attempts to be back with family, we had been in touch, a lot of emotions had built up, and last year is where I ended up. I attempted suicide. There’s a long story in between. But that’s pretty much the gist.

Were you back with your family at the time?

Yeah. it was 2010, New Year’s Eve, when I came back to Missoula to stay with family. There was just a lot of, due to the fact I had been gone for so long, there was a lot that bubbled up with my family and my dad. It kind of put me back into a dark place, so to speak. So the last two years was a big struggle for me to reconnect with my family and deal with issues.

How did your family react to your attempt? And how was your recovery?

I didn’t really make it well-known. My father knew. He was there for me throughout this battle. And I slowly kind of made it known to the rest of the family over the last year, and they’ve been great. Obviously, I was dealing with some issues. But they are on board with what I’m doing. My relationship with my family is now better than it has ever been. It gives me a lot of confidence in what I’m doing.

What helped you come back from your attempt?

I have a 10-year-old sister. There’s a huge age separation, but we’ve grown close. For a long time I went without love, but she’s like having a kid. It’s changed my life. Someone who loves you unconditionally. Between her and just my own will.

You know, with an unsuccessful suicide attempt, coming out of that, I got the feeling I was meant to be here. I wanted to use my experience to make a difference. I’ve written about it. After a week in the hospital, physically battling to stay alive, I made a commitment, and I really haven’t turned back since then.

How have you learned to manage things, if certain feelings come back?

Anxiety has probably been the biggest battle for me. I’ve tried to educate myself. Anywhere from yoga to just talking to people sometimes. When I’m in the worst of it, I reach out to friends and family. Sometimes when you’re in your own head for too long, you make things out to be terrible when they’re really not.

I dealt with it a long, long time, and I don’t know, post-attempt, that whole process for me was physically a struggle, and it was almost like something in me flipped, like a switch. I’d gotten mad that I did what I did. It motivated me to not go back there. And it’s kind of like taking on the walk. The bigger the challenge for me, it keeps me going on the right path. Extreme things to keep me happy and motivated, I guess. I gotta embrace the adventurous side of myself, and it’s made all the difference in the world.

My Facebook page is called Me Against Fear. It was for my family initially, but it kind of grew on its own. I kept with it, turned it into pretty much my life, to communicate with people who’ve been through what I went through. It made all the difference.

What have been the more striking responses?

Once I announced I was doing a walk for this cause and came out with the attempt and made it known, people anywhere from within AFSP or who do individual pages in memory of a lost family member … You know, I’ve heard so many stories and cried with people, talked with people … Once I came out with the attempt _ initially, I didn’t say a word about it, it was fear issues _ but once I came out, the page really grew, the blog grew, everything. Just an outpouring of people reaching out. I started reaching out to different Facebook page administrators. It became a cause I’m extremely passionate about.

Have you done any public speaking?

My background has been anything from promotional work to sales to … I haven’t stood up with a microphone in front of a seated audience, so that’s something that’s gonna be new for me. It doesn’t frighten me. I want to tell my story, reach people. So yeah, you’ve gotta start somewhere.

How do people treat the topic of a suicide attempt?

I think altogether. some people, especially my family, is pretty … I haven’t had any really deep, meaningful conversations about what happened with my family. But with strangers, I’ve had deep discussions. So it’s all across the board. It’s uncomfortable sometimes, and sometimes deeply emotional. We share, we get inspired to battle this thing. You know, with my dad, he’s fully behind me, but we’ve never spoken about the scary stuff, the dark stuff. It’s “I love you” and “I’m glad you’re still here,” but no why or what. It’s hard to talk with people, sometimes, for me, depending with whom you’re talking to.
You really can’t accomplish anything with silence.

Do you have any advice for friends and family of people who’ve made an attempt? There’s a growing number of resources, but not really in that area.

It’s so hard to either admit or to reach out, to get over the pride or the fear of asking for help. Like you said, resources are starting to be more and more, but take for instance Montana, where the suicide rate is so high. A lot of areas have no resources other than a 800 number. But if that’s the step you have to take, reach out. I have people who say, “I haven’t told my family, but I’ll tell you what I’ve gone though.”

It’s enough to know you’re not alone. That’s part of what I push. You have me. Who cares if it’s the Internet, you know? Reach out to somebody. It’s difficult to do, to admit, but there are people out there who do care. There is help.

When I found out about AFSP, the programs they push, the walks, the resources in my community, I felt a part of something. There are people who’ve gone through what I’ve gone through. We all want to belong to something, and I latched on to these people. More so than my family, unfortunately. But it helps to know there are people who have made it through. It gives you a lot of hope to know you’re really not all by yourself.

That’s for people who’ve had the experience. And your advice for loved ones?

Education is completely critical. I’ve had people tell me they lost their son and had no clue that … “I had no idea he was in this state, that it was gonna happen.” I think people need to educate themselves.

You know, like my dad, I wish he would have figured out it was this bad: “What can we do? I’ll do research, find a place where I can figure out how to deal with it.” For alcoholics, there are programs to figure out how to live with people, figure out how to be there for them. I feel like I’m speaking gibberish here, but education is vital. That’s the thing I try to push. I talk to so many family members, especially, now, and they’re curious to know what they can do. I just aim them to AFSP, to Facebook. There are a million pages out there that deal with it.

So, a completely different question, just because I like to hike: What are you carrying with you on your trip?

It’s a long list, but funny enough, it all fits into that tiny cart. The key is to travel light. A small tent, a sleeping bag, a little bit of clothing, It’s minimal, I’ll have to say that. I have water filtration equipment. The wilderness you’re walking through has water sources, and you kind of have to reply on that. Three pairs of shoes. Yeah. Food, tent, sleeping pad and bag, the clothes. When walking on a highway, you have to take the opportunity to replenish in every town. You carry food for three or four days, nothing more. Weight’s a big issue.

I don’t know if you read about it, but I actually walked through one state and had one setback. I experienced heatstroke, went to the hospital, doubled back to Missoula to regroup. It’s where I am now. I took three weeks to regroup, formulate a different plan. I left at the hottest point in Montana in three years. Bad timing. I made about 100 miles and had heatstroke. I didn’t want to die on my suicide prevention walk. It kind of defeats the purpose.

I told everybody about it, that I wasn’t gonna quit. It turned out to be a good story, but it was pretty scary. It took me a good week to feel alive again. That’s why I’m leaving again from Idaho, where I had left off. With completely new equipment. I was pulling a specialized cart behind me. I switched to, actually, a twin baby stroller, which a lot of cross-country hikers use. So this is round two, and I’m a lot more prepared.

So this image of a guy along a highway pushing a double baby stroller …

That’s why you put signs on it, so people don’t think you’re a crazy guy pushing kids in 100-degree heat! There’s a guy, we connected, who doing something similar, with his own cause. He got pulled over in 100-degree heat, and the cops thought he was pushing a kid in the middle of the desert. I have signage to make it look functional.

Have you had any response from law enforcement so far?

Yeah. The key is to contact them ahead of time. One for safety, two to keep them from thinking there’s trouble. But this type of thing is becoming more popular, on bicycle or on foot, taking it to the highways. There’s safety factors involved by contacting law enforcement. They kind of become your friends. They would stop give me water. They’re curious, like anybody.

Are there any stops on your journey that you really look forward to making?

With AFSP, they have an event in Sacramento. I’ve been there before, but I’m looking forward to the stops where there are people. I’m well-traveled, so the exciting part is seeing people. When you walk for four days by yourself, when you see people, you get pretty excited. You talk to gas station attendants like they’re your best friend. Maybe I’ll see some sights, but the purpose of this whole thing is the people, not so much the land.

With so much time by yourself, what will you be thinking about?

Good question. You know, anywhere from the next speaking engagement … I read a lot, meditate. It is pretty weird. I walked 100 miles and would find myself almost in a weird trance, and the next thing  I know I’m five miles down the road. It’s like a road trance. Walking becomes redundant when every single day you’re walking 20 miles a day. I try to think of family, write in my journal. When I have cell service, I try to reach out, update the page, text family, friends. I think they get annoyed because I do it incessantly.

What are you saying to them?

I think of weird questions to ask people. Because it does … I went through a stretch of four days in Montana where there really was nobody, and it gets pretty lonely. So you know, you pray for cell service at the worst points. If not, you write or read.

What will you do after this is all over?

Great question. I don’t know. I’m hoping something will manifest itself along the way. I’ll stick around in LA a while, maybe spend the winter there, look for work, continue to talk to people somehow. I’d like to turn this all into a book, self-published, Amazon, or … I think anybody who completed a long-distance walk has probably written a book, but I look forward to that.

I want to get into some formal training through AFSP. They have what’s called gatekeeper training, where you talk to people. I want to become as educated as I can, from mental health to suicide, Maybe I’ll get into counseling. I don’t know. I’m just a year removed from being at the worst point in my life.

I didn’t give you the fraction of my story, but I pulled myself through a lot of stuff. And I just hope to inspire people and encourage them to maybe do the same and realize there is hope. I try to keep it somewhere simple. I’m not a complex dude. Every day it grows, and I get different ideas, want to do more. I think over four months, I’m gonna end up in a completely different, great place.

I often ask this question: How to make this topic more comfortable for people?

Great question. I don’t know if you can force-feed it. It’s tough. If you advocate, you can go too far. For people who have been touched by it … I’m just learning. I don’t know. I came out with it and just tried to tell my story, and people kind of gravitate towards it. I haven’t gotten good at just saying, “Hey, you need to hear these issues. I know you’re trying to go to work or Starbucks or whatever.” I don’t take it to that level, and I don’t know if I ever will. But I want to be there for people who are searching and want to be inspired. That’s enough for me. I’m not a crazy ninja advocate at this point. Who knows? Like I said, it’s four months. Let’s say somebody tells a story that really touches you, wants you to push harder. I’m pretty new at being in the public spotlight. I just want to tell my story. I keep looking for ways to be able to grow.

You’re right, you didn’t tell much about your background, and I had a couple of questions. Were you all right in Las Vegas?

Initially, I didn’t have a choice but be homeless. The way the divorce transpired, I gave up everything. Plus, emotionally I lost it. I was hiding. I was in a lot of pain. From a failure standpoint, I just felt like I completely failed. I hid from stuff for a long time. But in Vegas, I was successful, I worked for the Venetian hotel. It was just another place to live. I got caught up in drugs, alcohol issues, but it was my home too. I could have lived in Rhode Island and had the same lifestyle. There’s more to Las Vegas than the strip and partying. It’s not a bad place for me. I lived a crappy point in my life there, but at the same time, I like the community. You glorify it: “I’m gonna run off to Las Vegas.” I did, and I ended up living there on and off for a long time. In a weird way, it’s my other home.

How did you decide to come home?

Through the magic of Facebook. I can’t remember what year it was, I think 2008. I finally got a Facebook page, and my family was like, “Hey, Darick is alive!” We slowly started getting into contact.

I was doing fairly well, I let them know, and we started talking more. And my dad, the reason why I came back, my dad had a heart attack, he was having health issues, and it really scared me. My little sister, I knew I had to come back for her and for him. And so that’s why I ended up saying, “Hey, you need to get your crap together and be there for your family.” You can’t go 10 years without family and not want to see them. Half I hid, half I longed to be back with them. I love them. Me, the black sheep of the family.

Are you still the black sheep?

Yeah, yeah. I have a huge family from upstate New York. We all have boats and blah, blah, blah. People would call my family the Kennedys sometimes. And then there’s me, adventurous, doing my own thing. But it’s becoming more accepted now. For a long time. I ran away from stuff. I walked away from lot of things, now I’m walking toward them. It’s taken 36 years to get my life figured out.

Who else are you?

Family is extremely important to me. Like I said, my little sister is extremely important to me. And now that I feel like I have a purpose with this cause, getting involved in mental health and suicide prevention and, you know, that’s kind of become my life. Those things are important to me. It used to be being selfish, doing my own thing. Now that’s what drives me, is people, one way or another. Whether it’s family or people I met though my blog. In the community. That’s me. It’s weird for me, but it’s becoming more and more familiar, to be about something. And people know that now.

Since that’s still pretty close to your experience, what else would you mention?

God, for the last year it’s all I’ve done. I love to travel, experience new things. I’m a lake person, a river person, and Missoula fits that. I like the outdoors, being on the water. I have always been into some sport one way or another. So yeah, I just like to live an active lifestyle. Hence the walk. It just kind of fit. It just fit what I’m about. I wouldn’t have taken it on if I weren’t confident about it. This is the fun part.

Talking with Tom Kelly

In this era of creative business titles, there’s something pretty cool about being the manager for recovery and resiliency. That would be Tom Kelly, whose life reflects his work. He’s been through a period of homelessness, the questionable interstate shipping of mental patients known as “Greyhound therapy” and more than one suicide attempt. Now he works for a major mental health provider as one of its peers.

He’s also moved from being scared of mentioning his attempts _ what if he was the only person with the experience? _ to being absolutely open. And after he tells his story, he often finds people who reply, “Me too.”

Here, Tom talks about his transformation, his work and the question of whether peers one day will run the mental health organizations that now offer them welcome. He thinks that it will take a lot to overcome entrenched perceptions.

“In my opinion, the professionals that work in the field only see people when they are doing poorly and in need of attention, help etc.,” he says. “They do not see people when they are doing well! When they see people such as myself, they say, ‘But you’re different!’ I am no different than the person who walks in off the street today … ’cause I was that person 20 years ago!”

We spoke by Gchat:

 Tom:  hi
 me:  aha!
 Tom:  Finally
 me:  sweet. thanks for being available!

Tom:  no problem my pleasure

 me:  ok then. is it all right to use your name?
 Tom:  Yes
 me:  great
 Tom:  First and last if you wish
me:  very nice. OK, then, and we’re off …

my first question is always to please introduce yourself. who are you?

Tom:  Well my name is Tom Kelly and I work in the greater Phoenix area for a managed behavioral healthcare company.

I am their Manager for Recovery and Resiliency.  In that role it is my job to help get the voice of individuals receiving services and family members to the table.  As a person with bipolar disorder with psychotic features and as a person who has attempted suicide on more than one occasion (three serious attempts) I am able to use my lived experience to help others understand what it is like for individuals such as myself.  I am able to help coach, mentor, train and educate not only staff members but also community stakeholders and individuals receiving services and show them that recovery is real and possible for everyone … no matter where we came from.

Anything else?
me:  how did you decide to talk openly about your own experience?

 Tom:  I decided to speak openly about my experience after a series of different events that have happened throughout my life!  It was a process.  I remember having challenges with mental health issues going back to kindergarten … throughout elementary school and high school and college I suffered from depression and the resulting desire to end my life.  After going through several hospitalizations and spending some time living on the streets I ended up in Arizona where I started getting the proper treatment. I was misdiagnosed with depression at that point but I knew there were other things.  When I started to understand the swings of bipolar disorder and get the proper diagnosis and treatment my life started improving.

Tom:  When I started getting that proper treatment and my life started taking a turn for the better I thought that it was my turn to share my story to help others who may have gone through what I went through.  I didn’t disclose everything at first – it was some of the things that happened to me! I would talk about the mental health challenges but not the suicide attempts.  It was not until I met others who shared a similar experience with suicidal ideation or attempts that I was able to say … Me Too. I guess there was hesitancy because of what people would think of me if I told them I had attempted to end my life.  I’ve come to the point where I am not ashamed of anything that happened so if I can share and help one person than I’ve helped one person!

me:  Where did you bump into others who talked about their experience?

 Tom:  When I first got introduced into the Arizona behavioral health system I started going to a support group for people with depression and bipolar disorder.  I was referred to the group from I was referred to the group from my hospital social worker at Good Samaritan Hospital.  I thought I was alone, I thought that no one went through the things that I went through … but in that group I found some shared and similar experiences.  From there I started advocating in the system and would meet others throughout the state.  Eventually I began meeting people from all over the country.  It’s interesting in that I can talk to a group of individuals wherever they may be and usually without hesitation there are always one or two people who open up and share their experience.  I wish I had bumped into these people decades ago as opposed to years ago!

 me:  How to make it easier for everyone to find each other, by the way? Any ideas?
(And why has it been challenging to find them?)

Tom:  Let me tackle the “why has it been challenging to find them” first!  Stigma, discrimination and prejudice!!  People who have attempted suicide have shared with me that they were ashamed, that they felt guilty, and that they became disconnected from themselves and others!  I can understand why some choose not to talk about their experience.  I was ashamed and couldn’t even tell my family what I had tried in the past because of the “perceived” belief on how they would treat me – so I just kept it bottled up!  I think we could make it easier for people to find one another by sharing resources and information throughout the “health community”!  Primary Care Physicians should have information about mental health and suicide in their waiting rooms.  They have information about high blood pressure, heart disease and how to get better sleep.  If they had information about suicide, suicidal ideation and behavioral health issues perhaps that would help people find a connection to a professional who could connect them to the community.  Education is also important – we need to start education individuals in kindergarten!

 me:  Did you ever tell your family, eventually? And how was the response?

 Tom:  I was in a hospital in Iowa and transferred to a hospital in Canada (where I grew up) – my doctor thought being around my family would help in my recovery! My sister flew down to Iowa and we drove back to Canada.  I shared with my sister and that was well received.  I have a great baby sister!!  When I got into the Canadian hospital I was able to tell my parents about what had happened and my second suicide attempt (but no one knows about the first or third).  They response was supportive from my perspective – I still have one sister that doesn’t quite understand what I go through – but my family is understanding!

me:  What’s your advice on how to tell family members about an attempt, or about thoughts of suicide? And what’s your advice on how they should respond?

(This being a big concern out there.)

Tom:  I wish I had an answer to that question as it is a big concern!  I guess I would take a matter of fact approach and describe the signs and symptoms of what it going on in a person’s life!  Paint a picture to help the family understand and empathize what their family member may have been going through.  After painting that picture by trying to educate the family about the signs and symptoms of depression, bipolar, etc … and explaining that some people with mental health challenges sometimes attempt (and share
those statistics) …I would suggest that they disclose their attempt.  If family members could understand the underlying issues going on in a person’s life perhaps they could understand the attempt.  I can not imagine what it was like for my mother to hear that her only son tried to kill himself.  My mother could not imagine what it was like for her only son to want to end his life!  By understanding the diseases, illnesses, disorders – whatever it is we want to call them, perhaps family members could understand why someone would attempt to end their life!  How should they respond – truthfully, honestly, and openly!

 me:  I want to go back to something you mentioned, about living for a while on the streets. Can you talk a bit about how you got there and how you got away from that … or at least how you got away?

 Tom:  I was married for about six years and after my divorce I became seriously depressed and decided to end my life!  I ended up at a hotel and took an overdose – about thirty or forty pills – can’t remember what they were and I started to become sick and I wanted to die – I didn’t want to be sick (weird I know) so I called 911.  I ended up at a private psychiatric hospital.  After a few weeks of care I was transferred to the State Hospital where I spent about 18 months.  After my release from the State Hospital my home was the streets of Waterloo, IA. They basically dropped me off on the streets with no plan of action – except the address for a homeless shelter and the name of a behavioral health outpatient clinic.  Well there was no room at the shelter and I spent the next few months on the streets of Cedar Falls/Waterloo Iowa.  I ended up back at the State Hospital and once again after another year or more at the State Hospital I was offered “Greyhound” therapy.   I was given a bus ticket to Florida – I had secured a place to live with my father at his trailer in Fort Lauderdale.  I was given the name of an outpatient clinic but
didn’t follow up. Eventually I left the trailer and spent a few months on the streets of Florida!  I ended up in Arizona in August 1998.  It was here in Arizona that I finally got introduced into the public mental health system.  The public mental health system gave me the support I needed to get back onto my feet.  They helped with vocational rehabilitation, medication, therapy and most important ‘housing’!! I ended up on the streets because I didn’t have any hope, I ended up on the streets because I didn’t care … well the AZ public mental health system offered me that hope and caring at a time when I had none!

 me:  And how did you move from being helped to helping?

Tom:  When I was introduced into the Arizona mental health system I thought I was the only person who went through what I went through.  When I found out there were others I started to socialize with them and attend a few support groups!  The one I mentioned earlier!!  From that I learned about the Arizona Behavioral Health System and a friend mentioned a County Advisory Council.  I didn’t know anything about advocating or speaking on my behalf let alone the behalf of another but there was a person that my friend thought I should meet.  That is the only reason I went to that meeting.  From that meeting someone heard me share a little about my story and said they wanted me to talk to some case managers. After sharing my story with those case managers in the system on thing led to another to another. I met people who were interested in helping me (because I started to want to help myself) and from there ended up doing some contract training for the local managed care company.  I say that I am blessed for what I have gone through (the good, the bad and the ugly) because I would not be where I am unless I went through what I went through.  I’m helping or attempting to help others today because I want to give back to a system that saved my life.  I want to give back to those who helped me get to where I am today!  In all honesty though – giving back is selfish for me –  for when I give back and help others I get the opportunity to let others know that there is hope … the more hope I can give … the more hope I get back in return!

 me:  Do you think the approach in Arizona is pretty representative of the approach in all areas of the country? I suppose this is a way of backing into the question of what changes are still needed to the system at large …

Tom:  I have had the opportunity to do some work around the country and I do not believe that the Arizona approach is representative in all areas of the country.  I was discharged to homelessness in two other States (Florida and Iowa) – I was given transitional living services when I was discharged from my only hospitalization in Arizona back in 1998.  The behavioral health systems throughout the country state that recovery and peer support are some of their overarching principles … Arizona followed Georgia into the peer support world within a few months!  I think some states are strong on peer support – many need help.  In my experience where there is strong peer support, the behavioral health system is a little stronger too!  Maricopa County through Magellan Health Services offers support groups for people who have attempted suicide that are peer-run and peer-led.  There are only a handful of support groups for people who have attempted suicide across the country … there needs to be groups such as this throughout the country.  Funding is a big challenge within the behavioral health world as many programs and states are underfunded.  I think funding would help improve the system at large – I think helping develop programs and including those individuals who go through what they go through need to be part of that program development!

 me:  You mentioned “Greyhound therapy,” and that reminds me of a story about a similar case that made the news earlier this month. Any idea how widespread that practice is? And surely it’s illegal, or at least unethical?

Tom:  Getting a bus ticket from one part of the country to another is cost shifting.  But other states offer that same service!  I do not know how widespread that practice is but to me it’s unethical.  In retrospect when I was given a bus ticket from Iowa to Florida, I did have an appointment with a counselor at an agency in Florida.  I didn’t know where they were, didn’t care, didn’t really plan on meeting anyone because of the ‘mental’ state I was in but the hospital did their ‘due diligence’.  If something happened they could have said “Well we gave Mr. Kelly the name and address of the Henderson Mental Health Clinic and he had an appointment!!”

 me:  Still, it’s amazing that people are just put on a bus. Have you seen any programs that do a really good job of addressing not only mental health but the underlying economic issues?

Tom:  There is one agency in Maricopa County that really focuses on employment for the people they serve.  Throughout the country the average rate of employment for people with serious mental illness is around 10%. This one agency in Maricopa County has an employment rate of 26% for people with serious mental illness.  Help put a job into someone’s weekly list of things to do and not only does it help the individual financially it helps the system because the individual becomes a tax payer and gives back to the community!!  The programs that focus on Housing First and Employment First are those that are doing a really good job of addressing the mental health and helping to improve the underlying economic issues!!

me:  This may be an ambitious thought, but how long will it take to move from peers being part of the system to peers running, or helping to run, the system? And how long will it take for many in the system to be comfortable saying openly that they’re peers as well?

Tom:  What is the saying about a cold day in …

Tom:  There are a handful of agencies across the country that have “peers” on their executive teams.  I was in such a position for a few years with another managed behavioral health agency.  There are many agencies that are non-profit agencies which are governed by Boards of Directors.  Many of those agencies have peers that serve as Board Members. I think that the peer voice is at the table to a better extent today than it was in 10 years ago!  I think that because of the belief that peers can recover and do in fact have knowledge, skill and abilities to move forward in the employment area many of them choose to stay within the behavioral health world. There are two National Managed Behavioral Healthcare Organizations that have peers who are serving at the Executive Team Level …

Tom:  I think the other question about how comfortable people are in disclosing their lived experience is a challenge!  I see more and more when I present that someone will come to me after the presentation and open up and say “Me Too” … when I ask them if others know about their lived experience they say “I can never tell people that I’m a peer – what would they think?” … there is still a lot of stigma, prejudice and discrimination going on … one day my friend … one day!!!

me:  I’m always curious about the more striking or surprising questions and responses people get when they talk openly about this. Does anything stick with you?

 Tom:  Please elaborate a little not sure what you are looking for ….

me:  You’re open about your experience. What are some of the more surprising questions or responses you’ve had about it?

Tom:  I guess I share so much about my experience and I am an open book that I don’t get too many surprising questions.  The responses I get, to be honest, are things people don’t say or ask!  Here I am, an open book willing to let them ask me
any question they want and … nothing!

I will have to think more about this particular question … I think I can find something that is surprising … just cant think about it now
 me:  What would you love to be asked? I don’t mind being guided along here!

Tom:  Once again … I don’t really know!

Tom:  Discrimination and prejudice seem to be more prominent within the behavioral health world and suicide prevention world than in the general community … How do we really get to the heart of the matter when it comes to understanding the damage that fear, ignorance and malice does in the work we do!

Tom:  I think it’s important for people to share their experiences and not feel ashamed to tell their stories.  Every civil rights movement started with a few people who had the courage to move forward … we need to develop courage and character and support folks for sharing their stories!

 me:  Why in the world would discrimination, etc., be stronger within the very field that talks about breaking down stigma?

Tom:  That’s the million dollar question!  In my opinion the professionals that work in the field only see people when they are doing poorly and in need of attention, help etc.  They do not see people when they are doing well!  When they see people such as myself; they say – but your different!  I am no different than the person who walks in off the street today … cause I was that person 20 years ago!!  When they don’t see that recovery is real and that recovery is possible they use “dark humor” and other defense mechanisms to protect themselves from “those people”.  It is funny that there is more stigma in the very field that is trying to eradicate it!!

me:  Interesting that you mention humor … Is there any way to talk about this issue openly with humor, dark or otherwise? I’ve seen a few interesting projects, like cartoons or documentaries …

Tom:  I think that the program coming out of Vancouver, British Columbia – Stand Up for Mental Health – is an interesting program.  David Granirer who is a therapist and has some stand-up comic experience travels around the continent and trains people with serious mental illness to deliver stand-up routines.  Victoria Maxwell does a one woman show about the ups and downs of bipolar disorder at different conferences around the world (I think she has three different shows).  I heard of another gal that does a one person stage presentation on the lived experience of bipolar too … but I forget her name!

Tom:  With the proper funding and support I think developing an Improvisational Comedy Troupe would be a good idea.  That way they could react to what the audience was giving them to work with!!

me:  Those people are good to know! I’ve spoken with David before … And here’s a change of subject. Let me know if you’d rather not go here, but why does it seem like the topic of assisted suicide is completely separate from the usual mental health world?

Tom:  A topic for another discussion for sure!!  Perhaps it should be called Assisted Death …

 me:  And for that matter, there doesn’t seem to be a lot of philosophical conversations in this field …

Tom:  I think the topic of assisted suicide is separate because the person has to go through lots of different things in their decision and are they not being challenged by whatever challenges those who do die by suicide without the assistance!

Tom:  I don’t really have a stance on anything in life … I really try to be a non-judgmental person … if push comes to shove … I would support someone asking me to pull the plug if it were in their living will!!  How about you?

 me:  I think I agree. It was startling to watch my father pass away and have no inrush of nurses because he had a DNR order, but he had declared his wishes and had been very open about his long fight, in his case with cancer. I just think there’s a lot of ground for very good discussions out there.

Anyway … here comes another change of topic:
 Tom:  Sure but you only have me for another 10 minutes …

 me:  Got it. Two more questions, then. This is question I often ask, because it was something that certainly stopped me from a more serious attempt: What if suicide prevention messaging emphasized the idea that no method is foolproof? That you can wake up in far worse shape? I think many people think, “Maybe this will work” and take huge risks in their attempts …

Tom:  I believe I have seen some messaging in that people could wake up and be in far worse shape.  To me it’s kind of interesting, I didn’t think of that at all when I was in a position where I wanted to die!  I didn’t want to jump because I was afraid of heights – not because I didn’t think it was NOT going to kill me.  I know people (two friends of mine today as a matter of fact) that survived bullet shots to their head – so that was out of the question.  With me it was always medication overdose.  I just wanted to end the pain, go to sleep and die in my sleep.  I’ve heard people have ended up in worse shape from all three of those different types of attempts!  I’m blessed and lucky after putting more than 150 pills into my system that I made it out of the coma relatively mentally healthy with no brain damage (that I know of LOL).  Those that think “Maybe this will work” are at a place where they need connection to something, someone in my humble opinion.  Perhaps the messaging would touch them – in my personal situation – I would not have thought anything about messaging around that thought!!

me:  Good points, and I’m scared of heights myself! OK, I like to end with this question: Since this experience most likely doesn’t define you, at least completely, who else are you?

Tom:  I am intuitive, perceptive, fun-loving person that enjoys helping others!  I’m a friend, brother, son, athlete, dancer and all-around nice guy!!!  Do you know anyone looking for someone like me … I’m single too!!

 me:  Ha! Let’s see what happens when that’s posted for the world to see!
Thank you so much for taking the time to do this!
Tom:  Hmmm maybe I’ll need to edit that last comment!